DISABLED TRAVEL - THE FINAL FRONTIER

This year’s LFCC was held at the Olympia Exhibition Centre Kensington in London. The Psych Twins / Amputee diaries were lucky enough to be invited down to review the event over the three days, as well as the opportunity to interview guests, cosplayers and attendees.

Showmasters, who organise these events all over the UK and now in Germany and Amsterdam, class the summer convention as their showcase piece, with some of the biggest names in Film, TV and Comic book genre attending.

We wanted to know how this worked for people wishing to attend who had mobility issues, disabilities, mental health issues or issues such as ASD, ADHD, Anxiety or panic attacks. Previously we have reviewed these conventions held at Newcastle and Glasgow. Although Showmasters are not responsible for the facilities that each venue they use provide, we feel that these things are important to take on board when organising events such as these, especially something as huge as the summer LFCC.

I am in a wheelchair full time with very limited ability to get out of the chair and walk and unable to self-propel. So it was me and my husband who went down to review the event.

We travelled down by train on the Virgin East Coast line from Newcastle central station to London’s king cross. This was my first time using a train for this type of journey since having my amputation and being in the wheelchair full time, so I was very apprehensive and nervous about this journey and how it would work.

According to Virgin it should be pretty straight forward to book passenger assistance for travelling as well as discount being available. After ringing to find out what the discounts where, and being passed around as no one seemed to know what I was on about I spoke to one customer service representative who was extremely rude, who even after being told I needed to stay in the wheelchair and their website offered discount for that, got nasty wanting to know what my disability was and telling me I was wrong. After referring her to the company website, she got loud telling me I did not need to read out the full page, passing me onto someone who deals with the website. I am pleased to say that this person was more than helpful sorting everything out and finally managed to get the tickets booked and passenger assistance booked for the journey.

Arrived at the station in plenty of time as requested and reported to the Virgin customer help desk. Shortly before the train pulled in a very polite gentleman arrived and pushed myself whilst my husband dealt with the luggage across to the platform our train arrived on, up to the carriage. He then got a ramp to put in the door way and pushed me onto the train wheeling me to my designated wheelchair spot in first class. We were assured that they would ring ahead so when we arrived at Kings Cross they would be someone to assist us off the train and to our car we had booked. The carriage they put us on was wide enough for the wheelchair to fit through the doors and access to a wheelchair accessible toilet. As some carriages have different dimensions, this is something that is taken care of at booking to make sure the journey you have booked is suitable for the dimensions of your wheelchair. After a very smooth and uneventful journey, we arrived at King’s cross station and no one there to meet us. After waiting for nearly ten minutes on a completely empty train, my husband had to go and physically get help to get me off via a ramp. This was done but we were then dumped on the platform and left with a case, two bags and me in the wheelchair to manage off the platform and out of the station to the car. The return journey was just as complicated. Although we had access to the first class lounge at Kings Cross which offered free charging stations, soft drinks, hot drinks and snacks and someone came to collect us in plenty of time there was still issues. Upon arriving at the platform and being wheeled up the ramp on to the train, it soon became apparent that the carriage was not big enough for my wheelchair. There was no turning space and the wheelchair did not fit through the automatic door at all. The representative for Virgin had no idea what to do, so I had to stand from my wheelchair and in quite a bit of pain manoeuvre into the carriage so my husband could fold the chair to get it through the door and into the wheelchair space. However due to the fact of the aisle not being big enough and the chair fitting through the door nor was there a accessible toilet on the carriage, I had to spend a three and a half hour journey with no toilet break.

The company we used was Addison Lee which you could very easily download their app on to your phone or access it by tablet, pc or laptop to pre book journeys. The website was very easy to use and once you entered all the journey details even give you a price for the journey before you booked! The driver we had was very polite and friendly with no issues on using the car they sent.

We were staying at the Hilton Olympia in Kensington, which was only five minutes by foot away from the exhibition centre which made it the ideal accommodation. Once checked in we were told that the original room we had booked had steps leading to it, which was not something mentioned on their website. The staff member checked for other rooms available that would be accessible as again there was no option to book an accessible room via the site using the HH honours system, ( this gives you preferential rates and better deals when booking on line and is free to sign up to), but there was an option to list any requirements that you might have. There was nothing with an accessible bathroom or wider doors so we opted for a normal room minus the stairs. So after being  given our room key we went to put our luggage way before heading to the restaurant for tea, but on arrival at the room found out that it was not easy to move around with the wheelchair even though we had booked a king executive room. David went and spoke to one of the staff members who very kindly upgraded our room to a suite to give us the extra space for the chair, but again this was not an accessible bathroom or wider doors.

The restaurant had a specific lift to the restaurant which was big enough for the wheelchair and two other people at a push. There was an ample size disabled toilet and the restaurant was very spacious and the tables easy to get to and reach.

The Olympia Exhibition centre is a huge, ornate, beautiful building on Hammersmith road and easy to get to via road or tube. They have a few disabled entrances to the building, the lifts are manned and internally there are a lot of lifts to get between the floors if you cannot use the stairs for whatever reason. There were plenty of disabled toilets, which included baby changing facilities but no adult changing facilities if someone needed personal care. However these where well sign posted and the space was amazing. The Olympia sets out the spacing of all exhibitors and traders at the various shows it hosts so this means that there is plenty of room to get around the venue if you are in a wheelchair or with a pram, even on a busy day and each event can book out different floors and sections of the building depending on how much space they require or want. This includes any side rooms or conference rooms that where on those floors that where hired by the event. It did occur to me if this was something that maybe Showmasters could have adapted in some way into an adult changing area for personal care needs.

The Friday was very quiet which meant there was lots of space and made it very comfortable to get around and easy to access all the traders, autograph queues and photo shoots. Once again for London they had out done themselves with stars such as Jeremy Renner better known as Hawkeye from the Avenger movies, Rutger Hauer from Blade Runner, Mad Mikkelsen from the new Marvel film Dr Strange and Hannibal from the TV show of the same name, just to name a few, not to mention cast from the popular TV show Game of Thrones, various power rangers and Wrestlers from the world of WWE. Access on the Friday was very confusing as no one seemed to know where they were supposed to be. Security were unaware of where desks were or where to collect extra help passes from, there were other members of the public trying to find out where to collect gold passes and diamond passes from and the staff did not know. I actually had to give one team of security staff my print out of the map of the event, which turned out to be of no use as exhibits had not turned up or things had to be moved.

 We ended up spending the first twenty minutes trying to find which entrance to access the building, which may not seem like a huge deal, but when you take into account how many people are rushing to get virtual queue tickets for some of the bigger names, the lower the batch number the best chance you have of fitting more autographs/photo shoots in that day especially if you are not down for the full duration. Also if you have a higher batch number there is a chance that you will not get to see that star as they may need to leave early, which is what happened to us on the Saturday.

We then spent another half hour trying to find out where to collect the extra assistance wristbands and walked the length and breadth of the downstairs of the exhibition hall. Finally we found a pit boss who issued us with extra assistance band and carer’s band but did not ask for any paper work as proof.  Speaking to other families who were in attendance over the weekend, both with and without extra help assistance, it became apparent that this was a common issue, with one family whose daughter suffered with MS having to also walk the length and breadth of the hall to find where to collect the extra help bands from. Not everyone who was there or who needed extra assistance where aware that help was available or that there was a free carer’s ticket available upon sending proof into the extra help team.  Although there was plenty of space so people could sit on the floor, there was no seating area for anyone who may have difficulty getting on or off the floor, nor was there an offshoot or separate room where any one suffering an anxiety or panic attack or a sensory overload could go that was quiet and cool so they could calm down.

Another great thing about the venue was the fact that there were plenty of places to grab something to eat, but like most venues of this type it was overpriced for what you got at £5 for a sandwich or £4.50 for two cans of coke. Although all places to eat where accessible to myself.

If you have the extra assistance wrist band and have paid for photo ops or wanted autographs then help was available to do this so you did not have to wait too long. Although some staff in the blue t shirts who were volunteers and not showmasters staff, seemed confused regarding what you could or could not be helped with. With regards to the photo ops, staff are meant to feed you into the queue with the first batch so there was no waiting and with the autographs if the queue was too long then provide you with a virtual queue ticket, which would allow you to return later and be added to the end of the queue, which should mean that you wait no longer than five minutes. Personally, I experienced no issues with gaining access to the photo queues or autographs, although it meant going to the pit boss to clarify what I was to do or where to wait and as stated earlier the blue shirts were unsure or just told you no,   as there seemed to be no queuing area for any one going in on an extra assistance band. There was only one occasion over the entire three days where I was moved to the front of the que upon returning or told by a blue shirt that they were not sure what help was available or what they had to do, claiming they had not been given training for that particular issue. Funny enough something that some of the security were saying as well.

Interviewing some of the amazing Cosplayers that were attending the event the general consensus was MCM London was better, especially when it came to cosplayers attending and being looked after, but in my opinion not regarding accessibility to guests or photo ops. Showmasters might not have it right, but they have at least gone some way towards making it better.  Most people we talked to said that compared to the is

sues that they had last year with heat, overcrowding and bad organising, this year was a big improvement, but still have a way to go. The YLAC area was easy to access, once you could navigate which lift took you where as the signage was not clear. The comic book alley, props, gaming area and retro gaming area where all accessible to someone in a wheelchair and never too busy and over all a lot cooler!  Speaking to the people who were crewing the props such as the Iron Throne etc all said that if someone was unable to get out of the wheelchair to access those for a photo shoot they would work around it which I was very impressed with.

The Saturday was mayhem. It was very intimidating being in wheelchair and even though I do not suffer from claustrophobia or personal space issues, I could feel myself panicking and feeling out of my comfort zone, with people not paying attention, stepping over or falling into you and walking in front of the chair. Because of how busy it was on the Saturday people sitting on the floor with their legs outstretched, especially in narrow walkways upstairs where they had erected temp walls for photo shoots to take place made it even more difficult to get round and in my opinion a danger and accident waiting to happen.

The staff although frazzled on the Saturday, I thought handled themselves very well. Although queues ended up merging and people didn’t seem to know where they were supposed to be queuing, which was the beginning of one queue and the end of another or for what star, they did the best they could to deal with any issues that came about or answer any questions that you had.

Sunday was a mixture between the two, busy but not to the point of not being able to move and the autograph queues were a lot easier to navigate and access as well. Both staff, attendees and stars seemed a lot more relaxed. With a majority of the cosplayers being there on a Saturday and not many around on the Friday, there was still plenty kicking around on the Sunday for photos. Most people we spoke to on the Sunday had just came down for that specific day with it being a much calmer day then the Saturday but not as quiet as the Friday and all the A listers still being there as well. By the late afternoon on the Sunday most of the traders where offering discounts on stock hoping to reduce the amount of stock that had to be packed back up and taken home.

So overall thoughts? Well from a disabled point of view help was offered once you could find the right person or indeed anyone to ask due to the crowds swarming around. Sometimes though this meant grabbing some ones attention or just having to wait patiently. Personally I would recommend plenty of rest in-between shoots and if viable taking a break from the event for a short period of time to get fresh air, lie down or just to rest in general and going back later on in the day as it is a very long tiring day which just increased my mobility issues and pain control and ended up having a knock on effect for the next day. Access was good but not impressed with the lack of knowledge from staff or security staff about where to get the appropriate wrist bands from to access the extra help.  More training would be advantageous for volunteers who do not work with showmasters on a regular biases and coordination from all team members would have also been a big advantage, so that every member of staff from pit bosses, showmasters permanent staff and volunteers where all singing from the same hymn sheet so to speak.

Over all a fantastic weekend with a great atmosphere, great guests and lots to see and do. I would have found it impossible to do everything I wanted to do had I just went for a day.  Not sure and could find no information on what, if anything was available if you were attending on your own and needed assistance to get around or access anything (Rogue events for a fee can offer an assistant if needed).

 So in conclusion as long as you didn’t mind the crowds and mayhem on the Saturday, bring your own food to avoid being over charged, plenty to drink, you can keep your calm and remember the staff and stars are human too so treat them with respect and what the crew member says when dealing with his or her area is the final word, then you are in for a treat. As with all these events, it is a logistical nightmare for the organisers and nothing, no matter how much you try to control or plan these things will run 100 %. There are lots of things that would and could be incorporated into some of the other events and that I would especially like to see happen in Newcastle, including bigger and better guests.

JUDGE NOT LEAST YOU BE JUDGED OR AS YOUR MAM SAID IF YOU HAVE NOTHING NICE TO SAY THEN KEEP IT TO YOURSELF

So it begins. The long war of the six week holidays. We are only at the end of the first week and already am feeling slightly frazzled.
Good job I had the two night break down the metro centre with the just the hubby. Recharge my batteries with retail therapy and us time.It was lovely! The Marriott was lovely. They give us an accessible room although  am not 100% convinced it was. The door to the room was difficult to get through unless you where angled straight on, but the room was very spacious and a huge king size bed. The bathroom was big and the toilet had grab rails and an emergency cord but the bath was not accessible and no bath board or seat was supplied.
The room was next to the lift which I had also requested and access into the building was great although, disabled car parking spaces were limited.

 The Metro Centre as you would expect, very disabled friendly, but some of the shops left a lot to be desired regarding access and help. Shops such as HMV was laid out great for someone in a wheelchair or with a pram. Other shops where more then happy to help if space was limited for example by moving racks out of the way or getting what you needed. However there where shops such as Topshop who where no help what so ever. Getting into the shop to look at clothes was ok but once in maneuvering around the racks of clothes was a complete nightmare! Forget trying to have a look at the sales rack and trying to get to the check out to pay, well not unless you can bend time and space. There was a complete lack of help and those staff who where around did not offer any help what so ever. In fact their nails and cuticles looked of great interest to them whilst I was in the shop. Upon asking the assistant behind the cash desk why the access was so restrictive for some one in a wheelchair or with a pram I was told that it was down to head office and how much stock had to go out on display. The only thought I had leaving the shop was maybe if you have a pram or are in a wheelchair then you are not allowed to be fashionable!

But that brings me to people in general. I don't think I will ever understand the human race no mater how long I study Psychology. People can be so generous, kind and helpful and this sometimes takes my  breath away, but then you have people who can be so narrow minded, down right nasty and selfish. What happened to this society? They used to be a time when people would help each other out especially in their own community. Today people seem so hell bent on their own selfish lives. Every one is entitled to there own opinions but today people seem to think that their opinion is the only one that matters and woe betide any one who differs. They are shouted down, belittled and ridiculed. There was an article on people who Cosplay and attended London Film and Comic Con. Now as stated before people are entitled to their own opinion about this. Some people might think its silly or sad but then again these people  might watch Big Brother which I personally find moronic and sad, but I would not ridicule, poke fun or belittle  these people for that. However this "journalist" (and I use the term lightly) thought that it was fair enough to have open season on the Cosplayers. Not at their costumes or their inaccuracies if any but at the actual people. Ridiculing their tattoos, size and the fact they liked to Cosplay . In fact calling them " oompa lumpas". Some Cosplayers from iCoslay who support a campaign for anti bullying penned a reply. Today this journalist published his response and yet again could not keep civil about it. Telling them that they are sad and if they insist on playing dressy up then people where free to make fun of them and pick on them and that was not bullying.
So if that is not bullying what is? Isn't bullying about ridiculing, belittling or picking on people for being different? Race, skin colour, size, hair colour, physical ability, any one poking fun for these reasons at a minority group would surly be classed as bullying, so why did this journalist think that what he was doing acceptable and NOT bullying. Because I look different in my wheelchair, with prosthetic legs and belong to a minority group does that give people the right to ridicule me? In this day and age every one is preaching about understanding, inclusion, standing up to stigma but how can we do this when our own so called press find it acceptable to put people down for this? Whether it is physical disability, mental health or Cosplaying the stigma needs to be removed across the board.YES I am a wheelchair user, YES I have suffered from depression and sometimes still do, YES I have no legs and YES I enjoy Cosplaying when going to film and comic conventions.

I am not ashamed of any of these things, why should I? Take me or leave me but this is ME, this is who and what I am. I will not be made to feel ashamed for any of it just because I do not fit into someones idea of normal. What is normal any way? Is any one normal? This journalist is an avid football supporter does this give me a right to tear into him in a public forum or a national newspaper and ridicule his size when he wears his football colours, how he does his hair, his age or the fact he should grow up and get a life (one of his other response lines in the article), instead of cheering on men kicking a ball around a field, swearing at the ref or chanting silly songs to the opposing side?It should not surprise you to find out that this same journalist ridiculed the disabled  and has had numerous complaints against him. He kind of reminds me as a male version of Katie Hopkins to be honest.

The event I am co hosting in October is just about getting together, having fun and at the same time raising money for a worth while cause. I have managed to get the help of some fantastic Cosplayers to help promote the event and take part in the evening entertainment, all free of charge, all given up their time. Their costumes are fantastic, the time, money, sweat, blood (literally if they where sewing by hand ) and tears that went into creating these masterpieces , all paid for out of their own pockets. They are coming with me to visit the Young carers as well to give the kids a treat and a chance to have their photos taken. This is more help then the press, celebrities and even companies have offered. (I have to mention here though that Sun FM , my local radio station, have been very supportive). Who would have thought that any business, after all that is what the newspaper is, would want to be associated with a small minded, bigoted person who represents and is the face of their company?

The one thing I have learnt from doing this event is every one and I mean EVERYONE wants their cut. The venue, the celebrities, the agents, fundraising sites even some of the companies who "offer" donations for prizes. Then you have company's like The Prop Store who send you a collectible worth £200 with out a blink of an eye. The celebs are the worst, I now have an appreciation for Showmasters and Rouge Events as to why they charge so much for tickets and autographs. Some demands including  'lunch money' and  cars to all airports as well as first class flights and two hotel rooms,  just adds to an already extortionist fee for attending these things and it being for charity does not count for squat. In fact they will stand there and shout your cause to the rooftops without knowing or caring anything about it as long as the price is right. I understand that they have to make a living but some of these Celebrities are making more then enough with out charging through the nose for the fans to met them.

 I feel privileged if they even bother to reply to my emails !



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A DAY OF RECKONING IS COMING

Still have no trainer to get me into shape for the Great North Run in 2016 so it looks like am going to be kicking my own arse for it.
Went to get weighed so I could have an idea of my starting weight . SO not happy! 21st 11lb. What happened? So have bought Asdas version of Slim Fast . finding it difficult but persevering. My snacking has stopped so have the biscuits and coffees ,but yes you guessed it , not so much the crisps which are my nemesis. Not crisps really these Fish n Chip biscuit things, really bad addiction to them but managed to cut down to only having them twice this week instead of every day so YEAH go me!
Re started my physio in a morning as well as light weights for my arms ( apparently exercise is supposed to help Fibro....still waiting for that one to kick in), sit to stands from the wheelchair to strengthen my legs and back. Had my first go on the treadmill as well. Worried I was going to fall flat  on my face but it went OK so starting that from next week.

So what has this last week brought me? lots not all good either. Took part in a study for a student at Oxford University which was really interesting and glad I did that. I have had an article published as a personal story for this blog in Disability Today which is an online site and there is the possibility of talking to new students in the new term taking on the level 0 of Psychology. this is to share my experience of the course, explain what happens at University once you get there, such as volunteering, society's and what to expect as well as doing Q&A sessions with them.
Mikey came home from Stafford University last Tuesday which was great.The kids are really happy to have him home as are me and his dad. Bless at the moment he is relegated to the couch as we have no room for him but when the summer holidays start anna is giving up her room for a while for him. Tylers SATS went well and he quite enjoyed them..strange boy and Anna has her prom this weekend so handbag and shoe buying was on the cards this week as well as booking the salon for her hair and nails.

Now the not so good news. Got a letter back from DWP and I have an assessment with ATOS on the 3rd of June. This should be interesting. They have asked for all my tablets and aids.... no room in the car for everything I need for help on a day to day basis and even if there was the assessment room would not be big enough. Worried about attending, people keep telling me that they should be no reason why I would lose it but hey this is the DWP who can say what they are going to do. I have heard stories of people who have lost the money and worse then me.Losing it would have a huge negative impact on my life and make me more of a recluse then I am already. At the moment other then Uni and drs/hospital appointments and possibly one day a week in the town I do not go out. I socialize....well ....I don't really. People tend not to ask me too and when David and I do get to go out to the pictures it is once in a blue moon to be honest.
Ended up at the Doctors as the Tramadol is no longer working and have been given more tablets to take along side the paracetamol and the Tramadol which are Nefopam 30mg. Have to start off on one tablet a day then slowly increase until am on 3 a day. So far experienced  a bad stomach, nausea and a slight euphoric feeling but no help with the pain. The doctor has told me that eventually, whether I want to or not , I will have to go onto the hard core tablets full time. That means not being able to function during the day. Not sure what impact this will have on my plans but hopefully I can stay off them long enough to carry out what I want to do.

Also having to have a blood test and an ultra sound on my underarm as they may be a lump. The worrying thing is that Cancer is big in our family my sister and niece have both been affected in various ways including breast and cervix cancer and my mother died of cancer of the stomach. Better to be safe then sorry I suppose but it is still worrying times. Also having to get in touch with the Genetics center at Newcastle to see if am predisposed to it. Still awaiting an ultra sound on my stumps about narrowing veins and hospital appointment to have my neck, shoulders and back checked out . Not good times.
could not talk to the doctor about every thing I need to as my anxiety and depression my be on the raise again but I had not made a double appointment and was told I would have to go back another time to discuss them. On top of all of this my dad has to have an MRI on Monday as he may have a form of dementia. The thing is he is now getting abusive to my older sister Maureen, but does not even know who I am...don't know which is worse to be honest. How would you feel if you mother was dead and your father did not know who you where and just thought you where some strange women?

To round the week off went into town on Wednesday and when in HMV was treat like a child by the sales assistant. I was so embarrassed that I honestly did not know what to say. I thought I had gotten over the whole self conscious thing and feeling insecure, lack of self confidence,but the way this woman treat me has really made me feel that way again, Its surprising how one little thing done or said that might not have been meant as anything in particular, or not even a conscious thing by the person, can have such a huge negative impact on some one.

However lets end this on a good point. Showmasters got back to me and they have refunded Davids tickets as they do carers passes and have sent me an email with all the information on  that will help me with getting around Comic Con in London ! So much help am over the moon and it has really stopped me stressing about going out of my comfort zone. Now am just looking forward to it. Still not sure to cos-play or what as so any thoughts on this would be great.

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