Showing posts with label Newspapers. Show all posts
Showing posts with label Newspapers. Show all posts

Saturday, 11 May 2019

THE DAY THE WORLD NEVER CHANGED


A lot happened since I last sat down to write anything. The idea had been to start doing news pieces still around disability and mental health issues but more generic and fun then so dark and gloomy and not always from my point of few. Unfortunately, that has not happened.

When I first started this blog it was to chart my progress on the run up to my amputations, the recovery and what happened next. It then grew into something more for me than just an online diary that people may or may not be interested in reading. It became a voice, a way to tell people and show people exactly how difficult life could be when you are disabled, but also to show others in similar situations that there is hope and to inspire people to get out there and start living their lives the best way that they can.

Now instead of finding fun light-hearted things to inspire me to write about, life keeps throwing me curve balls, so all I write about is the injustice, discrimination and exclusion people with disabilities deal with on a day to day biases.
I thought growing up in the ’70s, before things such as the equality act came into being, that the future for anyone with any kind of disability would be brighter. But let’s face it here we are in the 21st century and hate crimes or on the rise (just the fact they had to introduce a new law to cover these things says everything), and society is far from accessible or understanding at all, if anything I would say it’s less accessible in some ways, far less understanding and tolerant (and not just about disabilities) and less accepting.

Recently my son who has ASD and Tibia Torshin and my daughter were attacked on their way home from school, simply because he is autistic. Due to not being able to get a rise from my son who was trying his best to get home, they pushed his sister’s buttons, knowing that this would upset my son, trying to encourage her to fight. When my daughter refused they knew the way to get my daughter to lose her temper was to “trigger” my son, which they did. They did this by taking his bag, taking his pens and pencils out of his top pocket and knocking and throwing around his papers. This got them the reaction they wanted and he lashed out, hitting one of the kids who were in the midst of it setting off his triggers, name calling him, hurling abuse and mimicking his walking and talking. My daughter and son ended up getting kicked to the ground and repeatedly kicked in the sides, back, legs and in my sons head.

No one has been brought to justice over this, despite threats being made the week before about my daughter getting jumped through prank phone calls, despite ongoing talks with the school due to kids and teachers attitudes and bullying and despite reporting attacks that have happened previously to my daughters because their brother is autistic to the police. The children involved closed ranks, their families closed ranks and other people who saw what happened were too scared to say anything to the police for fear of reprisals. I even got accused of playing the victim, apparently having nothing better to do and my children accused of being trouble makers.

Welcome to a snapshot of equality and inclusion for anyone with a disability in the 21st century.

There are still so many businesses out there that do not understand what inclusion for people who have disabilities actually means. “But they make all toilets accessible now to everyone as not all disabilities are visible! “I hear you shout, and your right, but we still have people having to change their teenage child or adult on a dirty bathroom floor for the sake of extra space to put a full changing space in. “But public transport has disabled spaces!” another thing you shout at me and yes they do….but you see people won’t move out of the space if someone in a wheelchair needs to get on that bus. There has been plenty of stories in the press lately about people in wheelchairs being stranded by bus drivers, having abuse hurled at them by the other passengers for holding the bus up or even having to let 2 or 3 buses go past before they could get on one with the wheelchair space free. Now am not saying people with buggies should stop using buses, but it is my understanding (I refuse to use buses due to these exact reasons and how much anxiety it actually causes me, I would rather just not go out!), that there is one side for prams and one side for wheelchairs, if that is so then why is it not enforced if someone using a wheelchair needs to get on the bus? When I was younger (fair enough buses back then were not disabled accessible at all !!), but anyone who had a pram had to put it down and store it, just like you would if you were using a car and putting it in the boot. Half the time people are leaving the prams up and then the child is getting out and walking to a seat anyway, so wouldn’t it just make more sense to fold and store? I know the struggle of trying to manage a small child, a baby and bags of shopping whilst trying to fold and unfold a pram, but you did it, you managed, you had too.
I still get confronted every day by discrimination in various forms, even sometimes from friends and extended family (not all of them unintentional either, but that’s another blog post), and it can be disheartening, to say the least, and sometimes if your mood is not good it can lead to depressing thoughts that make you wonder why you bother and why you keep trying to be part of society let alone a productive one.

So what happened to the bright shiny future we were all promised? , the 21st century being all inclusive for everyone, everyone would be equal, no more segregation, no more discrimination?
In my opinion, for what it’s worth ( and after all it is my blog), sometimes there are days I stop and look around and honestly think it is worse now with exclusion and inequality towards disabilities then we ever were when I was a child.

 Now there’s food for thought.

Sunday, 5 June 2016

Me before you ? Are disabled lives worth less? #liveboldly

So there has been a lot of controversy over the new film by Warner Bros “Me before you”, especially over the pond. I haven’t seen anything on the news about it but plenty over social media and not so many complaining from the UK either. Now I can’t comment on the film as I have not seen it, nor do I intend to see the film it’s a chick flick and not my thing, but I have seen the trailer and the various points made by the disabled community.
Follow the link to see a video from center for Disability Rights  https://www.facebook.com/rochestercdr/videos/10153969290727550/

I can honestly say I can see where people are coming from regarding how it portrays disabled people, it basically says one of two things from what I have seen. The first being someone who is disabled needs an abled bodied person to make their life complete and show them how to live and secondly that if you are disabled then your life is over, you’re screwed and it’s not worth continuing with. I do think that some of the comments regarding it sending a message of just kill yourself might be a bit extreme but again I can see how it would seem that way. From as far back as I remember Hollywood has always used the infirm, disabled and disfigured as victims, evil villain (apart from Denzel Washington in The Bone Collector, but that was so ridiculous in my opinion don’t get me started on that one), or a figure of ridicule, needing rescuing or /and unable to do anything for themselves, the feeble side kick. Black actors complain about being left out of the Oscars but disabled actors are left out of the film industry.

I think, for me personally, the biggest issue I have is the fact that there are so many actors out there who have a disability, but Hollywood still pick abled bodied actors to play the roles. Why? Is it as simple as big names draw people and up the coffers in box office sales? Too scared to try an unknown?  I am a member of Amputees in Hollywood and a few years ago I answered a casting call to play Gazelle in The Kingsman due to being a double knee amputee and that was the criteria they were looking for. Lo and behold they picked a perfectly healthy and fit dancer who had both her legs and green screened the running blades. Now fair enough am no stick thin, sporty type far from it,( in fact weebles wobble but don’t fall down would better describe me) but like other people before me the weight could have been lost, I could have worn the running blades and the stunts still would have been carried out using stunt doubles or green screen and wires. However this said I may not have fit the director’s image of how she would look facially or age wise. Each director/producer has an idea or image of how their characters look or sound before casting begins so we can’t just say “you must pick a disabled person to play a disabled role” it’s not that simple, but it would be nice if they looked more at disabled actors first and not just automatically count them out.

Wouldn’t it be nice to see someone who was disabled being the hero for once? Or save the day? Ones I can think of is Rear Window with Christopher Reeve and Dare Devil. Win the girl because of their charm and sex appeal not out of sympathy or compassion. When I do reviews at Film conventions, one of the reasons I try to talk to the actors is to find out how they feel about things like this in the film industry including mental health.


I hope these people that are posting it all over social media and protesting against the message the film is sending, realize that all they are doing is helping fill the film companies’ coffers. As they say in Hollywood there is no such thing as bad publicity. All this is going to drive people who otherwise would not have bothered with the film to go and see what all the fuss is about. However I cannot see the film industry or Hollywood changing the way they act any time soon just because people are protesting, personally I think they will rub their fat, greedy little hands together and pat each other on the back at a job well done and about how the critics and the protesters are lining their pockets. Well played Hollywood, Well played.

Sunday, 13 September 2015

NEW START - NEW ACADEMIC YEAR

Back to University next week.  Getting broke in gently as there is only the welcome back meeting on Tuesday for an hour, but there is a catch up with the Thinking Ahead group. This is the group I joined last year that raise funds and awareness for Student Minds, also the reason I shaved my head if you remember. The only thing am not looking forward to is breaking in a new support worker who will help me get around Uni. Hoping she is not set in her ways or used to patronizing disabled people or the next year will be explosive !

Then its back to nose to the grindstone the week after as we get into full swing with our second year on campus. Still plenty of other things to keep me busy as well such as marketing and selling the Halloween Masquerade Ball tickets for the 31st of October https://www.facebook.com/events/417935758373799/
On top of this there is the decorations to order and the itinerary to sort out of who is responsible for what on the night. All of this on top of still having to finish up my CBT diploma I started half way through the holidays and being invited down to Merseyside to be a director with another charity and help them with their fundraising. Add to this that I have also applied for press passes for The Amputee Diaries to various comic cons and events, including in the USA, means that am going to be a very busy girl !

I am hoping to do more reviews for people who have disability's as I strongly believe that being disabled should not stop you from living life to the full. More venues and events are now aware that these things need to cater to every one, but don't always see the world from our perspective. They may think they have covered every aspect of the event for disabled people when in fact they are missing things, sometimes little things, sometimes HUGE bloody things and that is where my reviews come in. Not only to help people but also planners and businesses to address these problems, be more inclusive and in fact increase their revenue stream, audience and fan base. In fact since losing my mobility pretty much, my health getting worse, nearly dying during childbirth with Toyah, my dad being diagnosed with dementia and my mam dying, I have came to realize that life is just too short to worry about what people think and waiting for the right time to do something. Hence cosplaying and all the trips to Disney.

We are still waiting for social services to arrange visiting my dad to assess him for help due to recently being diagnosed with dementia. Since the diagnoses we have pretty much been told that we will have to fight for every scrap of help we get. Typical. It is so frustrating being stuck in this chair sometimes, feeling useless, watching people you care about needing assistance and help and knowing that there is absolutely nothing you can do to help and feeling that  you are no use at all.

This got me thinking about being a parent and disabled/wheelchair user. The issues it brings I think are unique, something most people will never experience. The first thing you notice is how much you have to adapt certain things to make them work. The next is how much you actually relay on your children for help. Basic things such as house work, doing the washing, cooking sometimes getting clothes on or off depending on if you are having a flare up at the time. My mind though I can keep active which am thankful for. Hence the reason for the charity and uni I guess.

 I am no longer interested in possessing things, but in having experiences. The bigger the better. Life does not have to be over just because you have suffered a tragedy in your life. Nor does it have to be over because of your age, after all its just a number, just like your tragedy, disability it does not define who you are.
People often forget to stop and take in the beauty around them, see the fun in most all situations and live life every day as if it is your last. Take chances, have fun, don't be scared to make a fool of your self ( hell I do that all the time that I don't even need to practice it any more ). But then again it has taken numerous tragedy's in my life and 46 years on this planet for me to do these things. Its not something that comes naturally to us but needs to be learnt, just like every thing else. There is no book on this, you can read as many books around this subject as you like but it will never enable you to do these things or be this way. That, am afraid, is down to you and you alone. In fact I think the more gadgets and tech we invent to make our life easier just clutters it and makes it busier. In fact I think people or trying to use so much tech and gadgets these days to free up time that they have less time then they did before !

Sometimes I think it would be fun to write a book based on my life, the husband thinks I should. But honestly I don't think any one would buy it as it would seem so fantastical and unbelievable. The things I have been through, the things I have done and seen. Hell plot lines of soaps  or more believable then my life some times. This summer alone I have :
Started a charity
organised and event
got donations for prizes
received press passes for a film and comic con
interviewed Chris Judge aka Tel'q from Stargate
interviewed Gareth Lloyd Davis aka Yanto from Torchwood
interviewed Doug"Hacksaw" Duggan from the WWF
Spoke to Michael Bien from Terminator
Spoke to Robert Enguland from Nightmare on Elm Street
Traveled to Glasgow
Done a diploma in CBT
bought a new car
been in a local newspaper
soon to be speaking at the local college to new Psychology students starting the extended degree course
went to a VIP event
had business cards done
had a shopping trip away
applied to be a zombie
got involved as a possible director for another charity
reunited with my dad and sister........and that's in 4 months imagine what I have done over the last 46 years! Some highlights are - insulted Eric Clapton (in my defense it was an accident), lived in a hotel suite for a month, been put before Westlife, drank with Bobby Robson, did a screen test for Matthew Vaughn for the film Kingsman.........

See life is not over, its only over if you let it be.

People look at me and see an overweight, middle aged women who is in a wheelchair with no legs. If they only knew......:)

(If anything in this blog or the other blogs have effected you and you would like to talk to some one please feel free to get in touch.)

Sunday, 23 August 2015

LIGHTS.,CAMERA, ACTION - OR IN OTHER WORDS FILM AND COMIC CON GLASGOW 2015

So it was amazing news two weeks ago when we found out that we had been allocated press passes to film and comic con Glasgow. This was a great opportunity for me to find out exactly what differences there where between Newcastle and another venue Showmasters used, if they had made changes to how the event dealt with disabled attendees and family’s and a great chance to speak to the guests who were attending to find out their thoughts on the event, cosplaying etc and a great chance to review the good and bad and downright ugly of being disabled and travelling and attending a convention.
So we packed a bag and off we went ready to take on everything and anything that would be thrown at us in the aid of the amputee diaries and The Psych Twins.

We travelled by car up to Glasgow on the Friday tea time. Over all it was a 4 hour journey including a slight misdirection through Glasgow and stopping off for a break. This was where the first problem was encountered. We stopped at the Welcome Break services at Gretna Green. There was plenty of disabled parking spaces right at the front near to the entrance to the services. Access was good with automatic doors and all shops where accessible. However the only disabled and baby changing toilet in the services was out of order, with no idea of how long it would be out of order for.
 Now although difficult for me to walk any distance, it was a necessary evil unless I wanted an accident to happen. For people who cannot get out of their wheelchairs or a family with a special needs child or even a baby to change, this was not acceptable. There was no other alternative to this situation unless you wanted to risk however long till he next service station. Travelling back on the Saturday night we stopped at the same services and guess what? That’s right the disabled toilets where still out of order. Obviously the engineer they had called was on a go slow or didn’t do weekends!

We arrived at the Travelodge at Breahead Glasgow around 9pm. Situation was excellent as the shopping centre where the event was being held was within a 7 – 10 minute walking distance. The hotel had plenty of parking spaces and right next to the entrance. Doors where automatic so no struggling trying to open doors and the staff where very pleasant and helpful. The whole area of reception, bar and café was accessible and clean although basic, but you get what you pay for. I had requested a disabled room and included breakfast. The room allocation was excellent down stairs not that far from reception. Only issue was if you were travelling on your own then the doors are heavy to get through to the corridor where your room is situated and your room key card has to be used to open them. This would be something you would not be able to do on your own unless you are a lot more flexible and resourceful then me, which is a possibility, otherwise you will need to ask a member of staff to help.
Entrance into the room was wide enough for my wheelchair which is wider then a normal chair.  The room was very spacious with room for me to manoeuvre in the wheelchair. Everything in the room was accessible from the wheelchair apart from the shelf above the clothes rail. The bed was two singles pushed together but very comfortable with a call button on the head board.
Again the room was sparse but as I said earlier you get what you pay for. The bathroom was huge and very spacious, lots of grab rails, lowered sink and mirror etc. but was very disappointed in the disabled shower, never mind how dangerous it was!
The controls where accessible but no shelf to put any toiletries on such as shampoo and shower gel so reaching for them would be dangerous ( actually impossible for me to do). The fold down seat was way too small and it was not possible to sit on fully, so was more of a perching stool. Well this caused an enormous amount of problems for me! Having to remove both of my legs to enable me to shower, this left me feeling as if I was falling forward. You needed your legs to brace yourself when sitting down. So for someone with no legs, weak lower limbs or unable to use them at all would have major issues using this shower without having an accident! In fact it was so bad that I had to ask my husband to come in and help me get shampoo and shower gel and to make sure I didn’t fall. In order to do this I had to brace myself with my hands on the grab rails. Now for someone with fibromyalgia this was extremely painful as all my weight was put behind this as it couldn’t be put through my legs. I had to risk taking one hand off a grab rail in order to get shampoo or shower gel put into my hand by my husband so I could wash. Even then it had to be quick and couldn’t be done properly as I kept falling forward. Basically if my husband had not been there, there was no way safely I could have had a shower on my own. When oh when are companies going to realise that there are more than just infirm or elderly people and not every disability or wheelchair users needs are the same? Travelodge take a leaf out of Disney’s book please, before someone has an accident.

We decided after the long drive to just eat at the Travelodge for tea. Poor choice. Got the steak sandwich with chips. What I got was tinned steak in buns with frozen chips. With two diet Pepsi’s that where smaller then cans, it came to £22. The breakfast was an all you can eat buffet thing but choice was minimal. There was plenty of facilities nearby so if you didn’t want to eat dinner or evening meal at the hotel then soar, across the road and parking lot, has lots of other options.
The arena is actually part of the shopping centre. If you have ever been to the Metro Centre in Gateshead then if you can imagine where the food court is and Metro Land used to be then that was where the arena was.
Car parking facilities where fantastic at this shopping centre. We had never seen so many disabled parking spaces so close to the centre before at a shopping outlet.
The que was already huge when we arrived at 9.30 am and with it being held in a shopping centre there was a few issues for any one shopping in that area and trying to get past.  We hunted down a staff member, who seemed to be few and far apart and it was very unclear as to where you were supposed to que for early entry and std and there was no indication at all if you had a press pass. We were told to show our email to the staff on the door. We were then given our press passes and we were off. 
Inside there was no foyer area so nowhere to wait for people or hang around for a break. The one saving grace was with it being in a shopping centre you could come and go as you pleased as long as you got your hand stamped. This meant that if you wanted a break from the madness and the crowds you could go out and sit in the food court, grab a coffee or something to eat or if you where going to be waiting for a talk or photo shoot to happen, the option was there to look around the shops etc. This however led to its own issues. Later on in the day you were stepping (or in my case trying not to roll over) people who were sitting on the floor everywhere. This was obviously also causing issues for shoppers in the centre who were not attending the convention.

Once in you were faced with loads of stalls and traders of all kinds. Yet again showmasters had crammed in so many stalls that manoeuvring around the stalls and up and down the aisles was bad for any one, but was a logistical nightmare for someone in a wheelchair or with a pram. It made it very slow going and sometimes very frustrating to get around with some stalls being total inaccessible to any one in a wheelchair. They had spread the guests out over two floors. Plenty of room for accessing the downstairs guests but could see that as the day got busier the lines could be confusing. Access to the upper floor was via stairs, with no signs to indicate where the lift was to enable me to access that level. After spending a moment trying to ascertain where these where we give up and looked for a member of staff. That was easier said than done. Volunteers seemed to be in blue t shirts and pit bosses in red. Very few around. Eventually chased after one and asked a pit boss how to access the top floor. She seemed a little confused then pointed us towards the service doors and told us she didn’t know but had been told to point people in that direction this looked like no access to a lift but we trusted she knew better and tried to get through the heavy doors. As we did a security guard belonging to the venue came over to get the door for us. As he was doing this he asked where we were going so told him that we were looking for a lift to access up stairs. At that point he told us that we had to go back out of the arena, across the food court and the lifts where there. After getting out we had to cross the food court upstairs and round the corner to where the box office was for the arena. The doors where sealed so had to wait to be let in by a security guard. Once up there we did notice that there was a service lift and wondered if this was where she had been directing us too. Up here there was the other guests but instead of spacing the signing desks out they were all cramped up.
This made queuing difficult and again the lines confusing to follow for each guest and this was before they let in pay on the door and std ticket entry’s. When it got busy it was nigh on impossible to get through to any of the lines and trying to que without getting in peoples ways was not possible.  Staff up stairs, both volunteers and pits bosses where sparse to find and there was no Virtual queuing system so the ques where getting out of hand very quickly. At Newcastle the pit bosses and volunteers where very helpful with me being a wheelchair user and there was plenty of staff around. At Glasgow however as well as very little staff there were no concessions made for people in wheelchairs or disability’s including people on crutches. Their website itself and staff have stated that anyone who is disabled would be moved to the front of the autograph ques to make access easier for everyone but this did not happen.
Before they let the standard ticket holders in and pay on the door through it was already jammed packed and difficult to manoeuvre. On my way to interview Chris Judge, just before noon they had moved the people queuing to around the food court instead of down the centre where the shops where.
Yet again I think Showmasters underestimated the amount of people who would be attending the event equal to the size of the venue.
There was some issues as to where wheelchair users accessed the talk areas. The husband had to park me up out of the way of people and exits, (not easy) while he tried to find someone to assist, (did I mention the lack of staff?). This resulted in me being parked down in between two stalls. As I was waiting for him to return David Prowse (Darth Vader out of Star wars, for those not aware of this character or the films (shame on you)), came up beside me. Due to his failing health he was also in a wheelchair being pushed by a volunteer from Showmasters. As the volunteer was trying to sort out a rubber ramp type thing he noticed the Darth Vader sticker on my prosthetic which made him chuckle. I happened to mention how ridiculous it was trying to get around in a wheelchair to which he agreed.
We eventually found someone who directed us to a small door where we could see the talks. Although it was technically a space at the side of the stage next to a speaker and the area where the guests actually entered from, it wasn’t too bad. Then again it depended on where you were positioned as you were not looking straight on at the stage but having to turn to the side and past the person sat next to you. It also meant that come the Q & A time you were pretty much over looked if you wanted to ask a question of the guest. The space realistically could only fit three wheelchairs and their companions in, any more was not going to happen.
By 2pm the que showed no signs of dying down and even by the time we left at 3.30 pm people where still queuing to get in, even though there was barely any room to move as it was at this point. They had stopped people from entering and to be honest I am not sure how they worked out when enough people had left to let any more in due to most people being able to come and go with a hand stamp into the shopping centre. Yet again I think showmasters under estimated how many people would be interested in attending and in future should consider providing more things such as enough staff, directions being visible and accessibility of the venue chosen all need to be taken into account. Bear in mind Showmasters if you have disabled guests and attendees attending and you chose to book somewhere that looks accessible, my advice is, still check for your selves. Might be an idea to take on someone who can deal with these issues specifically. Spread the stalls out as well please this would help everyone in the long run. We know more stalls equals more money from traders per table but think about the people attending and how much more money the traders would make if everyone could access their goods and services Just a thought.

I think that these events are going to become more and more popular in the UK simply due to the fact that the fans and collectors are becoming more and more aware that they exist in this country and are no longer the privilege of the States. The celebrities are also more aware that the demand in the UK to see them is huge so more and more are going to be willing to attend these events here. People are also becoming more involved in the whole thing as they look for more places where they can go as a family and where better than some where the kids can get involved in dressing up, meet Darth Vader standing alongside Captain Jack, where princess walk the isles and all their comic and film
book hero’s and heroines come to life and not only that they can have their photo taken with them as well! All this while seeing their favourite actor out of a tv show or film and Mam and dad and grandparents can all get involved in the fun, whilst re living their youth meeting actors and actresses from their favourite 80’s and 90’s shows and films whilst at the same time picking up that must have print or collectable for the sitting room.
So come on Showmasters unless you want to be elitist and only appeal to the hardened film and comic fan or collector, cater more for the disabled, the kids and the families who really want to attend just as much as the diehard collectors and fans. The people I spoke to who said it was their first time where definitely thinking of becoming return revenue for you. Isn’t that what you want?

Chris Judge who played Teal’c in Stargate Atlantis, very kindly agreed to give us an interview. He got into college on the back of a football scholarship but was not that serious about playing as much as others where and was always geared towards acting. Originally doing pre-med at college he minored in Psychology and as a fellow Psychology Student I had to ask him about Statistics. It seems that all Psychology students around the world dislike it which is good to know I am not alone. Jim “Hacksaw” Duggan was another star I was lucky enough to talk to. Both he and Chris Judge thought that fans at conventions in the UK were fantastic, a lot more friendly and easy to talk too compared to the USA. Across there it is perceived as more of a business then an experience for fans and fans in the UK made it seem more human and hands on. In fact every one of the celebrities thought that conventions where more like one big family and they definitely seem to love that fact.
With regards to disability’s all the people I talked to saw it as no reason not to attend one of these events if you have a chance and I agree with them. There was definitely more people attending with prams and small children, who’s eyes just positively lit up when faced with all the cosplayers. A lot of the stalls here seemed to be catering their merchandise towards children although there was still plenty for the avid collector to buy, trust me!

Speaking to some of the attendees the biggest issue was once again the lack of room to get around with a pram or wheelchair, lack of staff support and lack of signs for lifts etc. Some guests were unaware that it was spread out on two floors or in fact how to even access the second floor. In fact am still trying to work out where the disabled toilets where and I have been home since 9 pm last night!  Although once found all staff where friendly. The general consensus as well was that there was no reason not to give people with disabilities extra help when getting autographs and photos done and the majority of people I spoke to have no problem with this. I am hoping to be allocated a press pass for London in the winter just to see how they deal with one of their biggest conventions in the UK, which due to size is now being held at Brighton and I will be attending (in full cosplay) the Newcastle Comic Con in November not just for pleasure but to see if they have taken anything on board from other cons and changed anything from March.
 On the subject of Cosplaying both the guests and attendees all loved to see all the cosplayers in their costumes. Robert Englund especially liked to see the fans dressed as Freddy and approved of the cross gender cosplaying. They thought it added to the overall
atmosphere of the convention and the fun of it. All the guests found it flattering when faced with a fan dressed as one of their characters, but shocked to find out about the bullying that takes place in the cosplay community.  They were also surprised about the image the UK press had given it recently. Chris Judge thought that the Sci Fi community and the convention community in general where more evolved and accepting of peoples differences, which is why I think it came as such a shock to him in particular.  Speaking to some of the cosplayers themselves, nearly all of them had experienced some form of bullying or inappropriate touching from other attendees at the conventions and even some outside of conventions such as taking part in photo shoots.
Out of the Cosplayers I spoke to all agreed that cosplaying and being part of that community helped them overcome issues such as depression, anxiety and social shyness as well as boosting their confidence and making new friends from all over the country. Convention etiquette is simple. If you would like to have a photo taken with someone in cosplay, ask, do not assume and don’t touch their costumes. Some of them take a long time, hard work and lots of money to make, having someone come along and paw at the costume or them is not acceptable. If you like a costume, tell them if you don’t, keep it to yourself. Out of all the cosplayers not one of them said no to an interview or photo when asked politely.
Oh and if you really want to know as badly as I did if people preferred Marvel to DC… Marvel was the winner. Although some arguments continued after I had left on the subject matter.


 Most of the people I talked to had not heard about iCosplay, although out of those that had it was mainly cosplayers. I mentioned that it was a charity that existed to stamp out bullying in the cosplay community, which was given a positive response, but the general overall consensus from the stars and attendees was, disabled or not, attend a convention, see what it’s like for yourself you might just like it. If you’re worried or nervous about cosplaying at a convention, take a chance, pick your favourite character and just express yourself, if it helps to bring you out of yourself, or makes it easier to interact and talk to people then even better. They very much seemed to see it as a form of escapism as well as fun. If you do experience any kind of bullying for any reason then tell someone don’t keep it to yourself and most of all at the end of the day enjoy it. Personally I really enjoyed
cosplaying. My first time was at Newcastle comic Con in March this year. I was worried about what people would say and think, especially with me being in a wheelchair, in my forty’s and overweight. I was so glad I did it though. The amount of people cosplayers and non-cosplayers and even guests who came and talked to me, liked my costume or wanted a photo taken with me was unbelievable and it was so much fun, I was hooked from that point on!  As Gareth David Lloyd, who played Yanto in Torchwood said, if you don’t like it then you don’t have to do it again. So whether you cosplay are not in the immortal words of Shia la beouf – Just Do It!
Hired The Stig as the getaway driver after starting arguments over Marvel or DC !

Friday, 24 July 2015

JUDGE NOT LEAST YOU BE JUDGED OR AS YOUR MAM SAID IF YOU HAVE NOTHING NICE TO SAY THEN KEEP IT TO YOURSELF

So it begins. The long war of the six week holidays. We are only at the end of the first week and already am feeling slightly frazzled.
Good job I had the two night break down the metro centre with the just the hubby. Recharge my batteries with retail therapy and us time.It was lovely! The Marriott was lovely. They give us an accessible room although  am not 100% convinced it was. The door to the room was difficult to get through unless you where angled straight on, but the room was very spacious and a huge king size bed. The bathroom was big and the toilet had grab rails and an emergency cord but the bath was not accessible and no bath board or seat was supplied.
The room was next to the lift which I had also requested and access into the building was great although, disabled car parking spaces were limited.

 The Metro Centre as you would expect, very disabled friendly, but some of the shops left a lot to be desired regarding access and help. Shops such as HMV was laid out great for someone in a wheelchair or with a pram. Other shops where more then happy to help if space was limited for example by moving racks out of the way or getting what you needed. However there where shops such as Topshop who where no help what so ever. Getting into the shop to look at clothes was ok but once in maneuvering around the racks of clothes was a complete nightmare! Forget trying to have a look at the sales rack and trying to get to the check out to pay, well not unless you can bend time and space. There was a complete lack of help and those staff who where around did not offer any help what so ever. In fact their nails and cuticles looked of great interest to them whilst I was in the shop. Upon asking the assistant behind the cash desk why the access was so restrictive for some one in a wheelchair or with a pram I was told that it was down to head office and how much stock had to go out on display. The only thought I had leaving the shop was maybe if you have a pram or are in a wheelchair then you are not allowed to be fashionable!

But that brings me to people in general. I don't think I will ever understand the human race no mater how long I study Psychology. People can be so generous, kind and helpful and this sometimes takes my  breath away, but then you have people who can be so narrow minded, down right nasty and selfish. What happened to this society? They used to be a time when people would help each other out especially in their own community. Today people seem so hell bent on their own selfish lives. Every one is entitled to there own opinions but today people seem to think that their opinion is the only one that matters and woe betide any one who differs. They are shouted down, belittled and ridiculed. There was an article on people who Cosplay and attended London Film and Comic Con. Now as stated before people are entitled to their own opinion about this. Some people might think its silly or sad but then again these people  might watch Big Brother which I personally find moronic and sad, but I would not ridicule, poke fun or belittle  these people for that. However this "journalist" (and I use the term lightly) thought that it was fair enough to have open season on the Cosplayers. Not at their costumes or their inaccuracies if any but at the actual people. Ridiculing their tattoos, size and the fact they liked to Cosplay . In fact calling them " oompa lumpas". Some Cosplayers from iCoslay who support a campaign for anti bullying penned a reply. Today this journalist published his response and yet again could not keep civil about it. Telling them that they are sad and if they insist on playing dressy up then people where free to make fun of them and pick on them and that was not bullying.
So if that is not bullying what is? Isn't bullying about ridiculing, belittling or picking on people for being different? Race, skin colour, size, hair colour, physical ability, any one poking fun for these reasons at a minority group would surly be classed as bullying, so why did this journalist think that what he was doing acceptable and NOT bullying. Because I look different in my wheelchair, with prosthetic legs and belong to a minority group does that give people the right to ridicule me? In this day and age every one is preaching about understanding, inclusion, standing up to stigma but how can we do this when our own so called press find it acceptable to put people down for this? Whether it is physical disability, mental health or Cosplaying the stigma needs to be removed across the board.YES I am a wheelchair user, YES I have suffered from depression and sometimes still do, YES I have no legs and YES I enjoy Cosplaying when going to film and comic conventions.
I am not ashamed of any of these things, why should I? Take me or leave me but this is ME, this is who and what I am. I will not be made to feel ashamed for any of it just because I do not fit into someones idea of normal. What is normal any way? Is any one normal? This journalist is an avid football supporter does this give me a right to tear into him in a public forum or a national newspaper and ridicule his size when he wears his football colours, how he does his hair, his age or the fact he should grow up and get a life (one of his other response lines in the article), instead of cheering on men kicking a ball around a field, swearing at the ref or chanting silly songs to the opposing side?It should not surprise you to find out that this same journalist ridiculed the disabled  and has had numerous complaints against him. He kind of reminds me as a male version of Katie Hopkins to be honest.

The event I am co hosting in October is just about getting together, having fun and at the same time raising money for a worth while cause. I have managed to get the help of some fantastic Cosplayers to help promote the event and take part in the evening entertainment, all free of charge, all given up their time. Their costumes are fantastic, the time, money, sweat, blood (literally if they where sewing by hand ) and tears that went into creating these masterpieces , all paid for out of their own pockets. They are coming with me to visit the Young carers as well to give the kids a treat and a chance to have their photos taken. This is more help then the press, celebrities and even companies have offered. (I have to mention here though that Sun FM , my local radio station, have been very supportive). Who would have thought that any business, after all that is what the newspaper is, would want to be associated with a small minded, bigoted person who represents and is the face of their company?

The one thing I have learnt from doing this event is every one and I mean EVERYONE wants their cut. The venue, the celebrities, the agents, fundraising sites even some of the companies who "offer" donations for prizes. Then you have company's like The Prop Store who send you a collectible worth £200 with out a blink of an eye. The celebs are the worst, I now have an appreciation for Showmasters and Rouge Events as to why they charge so much for tickets and autographs. Some demands including  'lunch money' and  cars to all airports as well as first class flights and two hotel rooms,  just adds to an already extortionist fee for attending these things and it being for charity does not count for squat. In fact they will stand there and shout your cause to the rooftops without knowing or caring anything about it as long as the price is right. I understand that they have to make a living but some of these Celebrities are making more then enough with out charging through the nose for the fans to met them.

 I feel privileged if they even bother to reply to my emails !



You can find the event details on Facebook https://www.facebook.com/events/417935758373799/

Website http://thepsychtwins.bravesites.com/

The Psych twins Facebook page https://www.facebook.com/psychtwinsfundraising?fref=ts