Showing posts with label birthday. Show all posts
Showing posts with label birthday. Show all posts

Thursday, 4 June 2015

....AND NOW WE WAIT

Another week has gone by and another busy time in my life. For some one who is unable to work it sure seems like at times my life is non stop and there is not enough days in the week. However expecting things to calm down now due to University finishing, although there is still the October event to try and organise.

Final exam over with so now the waiting begins for the results. Seems that this month is going to be all about waiting. Did find out that I passed my media piece for Psychology in the media so it looks like that module is in the bag. We do not find out about the others till the beginning of July. Was a bit disappointed with how the last exam was handled to be honest. As part of the help from University I was supposed to be put in a room on my own with my own invigilator, flash drive. PC use, my support worker to scribe if necessary and extra time. Yes I had my own Pc and invigilator but was put in a room with 4 other people. As you may imagine this made it difficult to scribe to my support worker if needed as I would disturb others and they would hear my answers ! Yes I was given my own invigilator but this seemed pointless as they had one in as well for the other 4 people. The multiple choice questions they wanted us to write the answers down which negated the point of having the PC as typing is a lot easier then hand writing for me. To top it all off I had to point out to the invigilator that I qualified for the extra time. Fingers crossed though that this has not impacted on my results. Also found out that not only can I take books out for 4 weeks if they are a week loan but if I take them in to the campus to be renewed instead of on line then instead of renewal for one week I get it for another 4 weeks. Handy to know for next year.
With the summer holidays now here for me this has enabled me to concentrate more on my reading for pleasure and building up the Psych Twins. So watch this space. Although it is so frustrating trying  to get celebs to attend this event but will keep being a grade A stalker in order to get the attention this cause needs.

Tylers birthday went really well. Tyler as I may have mentioned before has ASD and it is mainly a sensory thing. We got a friend of ours to make him a plant vs zombie cake and his reaction was priceless and so unexpected. He sobbed in my arms with happiness! For those people who do not know anything about children with ASD, showing signs of emotion is very rare and for some never happens. So now you can see why this is such a big thing ! Put the cake on twitter and was pleasantly surprised to get responses from POPCAP the game creators and the artists of the game wishing Tyler a happy birthday

. To say this made is day more then anything was an understatement.

Had some fun being a poster child for the college. Went off to Bede College on Tuesday to do a photo shoot and interview with their marketing department. Looking forward to see if they use any of the material. As long as I don't end up on the back of a bus.

The big day came for the PIP review with ATOS. The woman who we saw was nice and she was a general nurse, fair enough of hematology but at least she was a nurse. After answering a lot of questions, some of which where quite degrading to answer and de moralizing, and having to explain in more detail what I had put on my form she finished with asking me a very bizarre question . If I had any pets? Still trying to work out how this is relevant . Answers / suggestions would be appreciated. After being told on the letter that I needed to take all my meds and aids with me (which I could not take all of them btw), Was told that she did not need to see them, Nothing was asked of night time care. She wanted to know if I could make a meal for my self and use the microwave, but not interested that it could only be done if some one else brought the stuff out of the fridge/freezer or cupboards and then carried things through for me or that if using the microwave I could put something in but not take it out again, and again needed some one else to bring the stuff from the fridge/freezer for me. After about an hour of questions she then asked me to move my arms in various ways and grip with my hands. Then it was over. Now I have about 8 weeks to wait to find out if I get to keep my DLA or not. Not that that is going to stress me out AT ALL.

So what next? Well try and relax. HA. Work on The Psych Twins website some more and getting things organised for his event in October. Read for pleasure, although I will be making a head start on next years university reading after I get my results and know I have passed.

 And keep working on my dreams. These are passing this degree, doing a counselling course then off to Teeside to study for my Doctorate in Psychology and counselling for practicing CBT.

I like to dream big.

Thursday, 12 March 2015

TIME GOES SO QUICK....

So Annabelle 16th birthday has came and gone already. Michael is coming up twenty one in less then a week and Eden ( my second eldest daughter ), turns nine the day after Mikey.

As well as getting crowned in Disney we took her for a meal in town. A restaurant called D'Aqua in Sunderland.

Now this restaurant does not have disabled access, in fact there is quiet a steep set of steps at the front of the premises. However upon ringing them they helped to solve the problem and told me that there would be no issues for me to use the kitchen access at the back of the building as it was ramped with one small step to negotiate,

The staff and owners bent over backwards for myself and to accommodate the wheelchair and where fantastic with the little ones as well. Nothing was too much trouble for them and they made the children feel welcome. even thought it is what I would class as a up market/ chic restaurant. As for myself I felt very comfortable and not once did they make me feel as if I was an inconvenience ! Bravo ! unfortunately there are not many places around where they bother to take into account your whole experience including how you feel and make you feel welcome.

So if you are looking for somewhere a little different and that little bit special I would defiantly give this place a go.

If you do have mobility issues like myself then do ring them They are very accommodating (within reason of course), and are more then happy to help if they can, The prices where good and the food quality was out of this world. My kids can be fussy eaters especially Tyler as he has sensory ASD, but they left nothing and even asked for more.
 The cake we had made for her by Bella Sweet delights, I will put the link for both the restaurant and Bella at the end of this blog should you be interested.

The limb center meeting about the bleeding stumps and coldness of the legs went better then expected. They are sending me for a scan of my legs as although they have a good pulse they could be a narrowing of the arteries or a blockage which is causing the issue.

This has had to be referred from the GPs  so as yet still waiting on an appointment.
The kitchen is now looking more like a kitchen. We finally got a sink back and cupboards to put things away. Still waiting on flooring but we do have the holes fixed with ply wood over the top, An extractor fan and tilling still need to be done so we can then decorate but still missing skirting boards.

This has now been on going for  6 or 7 weeks now so starting to get a little sick and tired of it all.

The last thing I want to mention is help for anyone who might be looking or thinking of going back to work.

Don't think that there is no help out there as if you need support, help with your travel needs or specialist equipment then it is available through Access to Work.

As well as this there is a little known about incentive for employers to take you on as well. There are funds available for the prospective employer to have adaptations done at no expense to them as well as money for taking you on. There is no cost to the employer for any help or equipment supplied. This can include things like chairs, desks or wrist rests and many more things.


Next time I will be reviewing the services used for Toyahs birthday, my charity head shave, Sun FM interview and help being put in place for the exams (hopefully ).

I would love feed back on this blog so please feel free to share and comment and if there is anything in particular you would like me to look into or have a question about then please let me know.

On a lighter note..when moving please remember to take the one break off you have put on as you will end up going round in circles..just like I did because I forgot !

https://www.facebook.com/pages/Bellas-sweet-delights/619275984859630?fref=ts

http://www.dacqua.co.uk/

https://www.facebook.com/pages/DAcqua-Restaurant-and-Bar/158809227587465?fref=ts

https://www.gov.uk/access-to-work/overview