Showing posts with label positive. Show all posts
Showing posts with label positive. Show all posts

Tuesday, 23 August 2016

Discrimination I tick all the boxes aren’t I lucky?

I have often heard the word “discrimination” being bandied about, a lot, in the last ten to fifteen years. I never saw myself as being discriminated against though. Not when I was a child and I had to wear calipers, not as a young adult who had to wear surgical boots. It wasn’t until my last amputation which has ended up with me in a wheelchair due to other health issues, have I felt discriminated against.


Employers discriminate against me, travel companies, friends, strangers, hotels, events, venues, I could go on, and hell even inanimate objects discriminate me!
This is not just because am an amputee but because am in a wheelchair. In fact I seem to tick all the boxes when it comes to people to shame, hate or discriminate against. I am disabled I have no legs and am in a wheelchair, this means am lazy, scrounger, pulling a fast one, unable to hold a conversation, understand what is being said to me or indeed hear ! God forbid I have feelings, like sex, (yes I have been asked that) have romantic intentions, enjoy compliments (other than a pat on the head and a “good girl”, I sometimes feel like either panting and whining like a dog at this point or wheel myself over to a window and start licking it), let’s not forget the looks which are a mix of horror, morbid fascination and surprise when people find out that I am a wife, mother,
business woman running her own company or studying for a degree.
Then you need to add the weight. I must eat everything in sight, it’s my fault am this big, I have let myself go, am disgusting, no one could want to be with me, how can I be married or have children being this old. Now I see this kind of fat shaming all over the place. The latest being a picture going around on the internet of a girl dressed as Harley Quinn with the caption “she must have ate the squad” https://www.facebook.com/Deadpoolisasavage/?hc_ref=SEARCH Mate you’re a dick!! And while am at it https://www.facebook.com/keith.harris.3154284 you are a dick as well. What if we got hundreds of people to comment on a photo, a REAL photo of you and you had a big nose or spots or wore glasses or had freckles. Would you like to have this picture put around the internet with some derogatory comment so that anyone and everyone can have a pop at insulting you or discussing your size and whether or not you should or should not be cosplaying a character? Do people actually have any idea how this makes a person feel?Yes am calling them out on social media, whats good for goose is good for gander so they say. so if it is acceptable to fat shame some on on Facebook then it is acceptable to shame some one for being a dick. I myself am a lot bigger than the person they are insulting and I sometimes cosplay.
It can take a lot of courage and confidence to do some cosplays and I have in the past let my size and my disability dictate my costumes…no more. My weight is not from eating too much, it’s down to the amputation, not being mobile enough or being able to exercise the way I used to, medication am on that causes weight gain, and have six beautiful, highly intelligent children, IBS, Arthritis and Fibromyalgia. So no not pizza, or sweets, although am partial to crisps – but only salt and vinegar though.
Finally add my age. I am past…. Well… Pretty much everything according some people. Having fun, flirting, University, cosplaying, going to events, being a nerd just to name a few. Oh and we can’t forget the best one, the fact I have six kids. Obviously I only had them to scrounge off the tax payer and the state, because, you know I have NEVER EVER worked…yea so the last 31 years must have all been a dream then? Going to work with plasters on after major surgery to my feet, back at work three month after a double below knee amputation, signing on at the dole to look for work whilst waiting for a fitting for new legs, going to interviews with my stump boards on and no legs….I could go on but what’s the point.

Now if you add all of this together, you end up being treat like shit, ignored and feeling inside that you are unattractive, unappealing, waste of space and a sub human, non-sexualized as you don’t count.  
You are left wondering why you bother trying to live your life like everyone else or try to enjoy what others do. You give up trying to make an effort with your hair, makeup or clothes – why should you? No one cares, no one notices you are still treat less than anyone else who puts in less effort.  You are left wondering “ should I starve myself to try and force my body to lose weight? “ or “ who cares, why should I care what I eat any more instead of restricting myself and being good – sod it – am going to stuff my face, makes no difference any way does it? Still going to be seen and treat the same way.

You’re not seen as a person or a women you feel like you are seen as nothing more than a lump in a wheelchair, an inconvenience, someone to either feel sorry for or to ignore because you don’t know what to say are how to react ( for future reference, the same as you do to anybody else who isn’t in a chair !), hey I get it, who the hell would want to be reminded just how fragile life is, that this is something that could happen to anyone at any time on any day. No one wants that shit rubbed in their face now do they.
There are a lot of people banging on about equality in recognising disabilities as not all are visible. I get this, I really do people need to understand that the person using the blue badge may look perfectly healthy but they could just be having a good day, or have some health issue you are not aware about, so it is unfair to say they do not deserve that blue badge and parking space. But I often wonder if it’s not easier having an invisible illness or disability? No one knows unless you tell them. Until that point, or even maybe after that point as well with it not being visible and in their faces, people treat you no different. You’re a woman / man, attractive, a sexual being who likes compliments and being flirted with who is capable and people wouldn’t be surprised if you went to university or got married, had a job or started your own business.

You see, am so used to this crap that most days I can ignore it, but there are days I cannot. This weekend whilst working I could not. In your personal life being treat like that is bad enough, but when it is in your professional life. When you are looked down on and treat differently to all the other professionals who are there for the same reason just because you are in a wheelchair, with no legs. When, for the same reasons, you are blocked from interviews that have already been arranged, that you are made to feel that your business isn’t good enough, big enough or the people you write for are not important enough, that’s bad….real bad.

Saturday, 21 May 2016

A ROSE BY ANY OTHER NAME

****WARNING IF YOU ARE OVER SENSITIVE AND VERY PC YOU MAY FIND THIS A BIT CONTROVERSIAL*******

I have seen a lot of posts by people lately regarding how to address some one who is disabled or what to say /not say to them

 To be honest I find it all a bit silly


 Am not the most Politically correct person out there but as far as am concerned calling me by my name is fine. Honestly I will even answer to "thingy" or "you" even "Fred" just try not to use Jennifer too much as when I get my full name it usual means am in trouble.

I get it, some people feel that being called "wheelchair bound" "disabled" or "handicapped" (too be honest although am not fussed I try to refrain from the last one as it seems a bit degrading). They feel that these terms and others define them or that they are being defined by their disability. I am an amputee because I have had an amputation, but that does not define who I am. Am lots of things (play nice now), am a mother, wife, daughter, student, blogger, Therapist as well. I am however bound to my wheelchair to some degree, without my wheelchair I would not get very far at all or get out so the term "wheelchair bound" is accurate as far as am concerned. Disabled to me is accurate as well there are lots of things I can not do and I am not abled bodied either.

why do people get so bent out of shape by these terms and the use of them?

I have a theory ( and no its not about bunnies! and if you get that reference high five.).

From most (not all and am by no means taring every one with the same brush here), of the articles I have read there seems to be three types of people that find this terminology offensive:

"The do gooder" - People who have never suffered any kind of disability or health concern in their life but think they have the right to voice an opinion on this subject as an expert.

"The world owes me" - People,  who for what ever reason,  have become more and more bitter over time due to their disability or illness. They feel, rightly or wrongly,what has happened/wrong  to/ with them that it is every bodies fault ( I get this to some degree, its not easy to keep a positive outlook going every single day when you feel so useless and / or limited by whats wrong and the world will not accept you for you and most activities or places are not accessible, every one has their off days). But really? The world doesn't owe you jack squat mate! Yes maybe a helping hand now and then to do things or access places.  Use what you have to your advantage, make the most of it and start living because before you know it life has just passed you by.

"My life is over or why cant this have happened  to some one else"  -  People who have ended up with an illness or becoming disabled later in life through no fault of their own. Again I understand. One minute being healthy and able to do any thing or go any where, your future looking bright and shinny and the world at your feet, to within 24 hours having all this ripped away from you. It is a hard pill to swallow. It is also a bloody hard thing to get used to and come to terms with -  fighting pain, depression, friends walking away because they don't know how to react or cope, people staring, suddenly having limits put on as to what you can do, places you can go or even things you can wear.  ( I went through all of this for nearly a year and a half then decided I had enough. Now I wear what I want, I pimp my prosthesis and rock Darth Vader on one of them, wear shoes that make people stare and generally make the world bend to me.) I understand that this takes time , but some people just never adjust, adapt and learn to live with it they are too busy lamenting what they have lost.

How about instead of trying to define what we should and should not be called or what "boxes" "abled" bodied people put disabled people in, or in fact whether or not people should or should not help us with bags or opening bloody doors for us , why don't we just agree that we are just people with a difference? What terminology is used really doesn't matter does it? not unless it is meant in a bullying, nasty, creepy kind of demoralizing way. Unless some one is deliberately putting you down you define who you are, you put the limits on yourself its not a "us" and "them" thing, or at least it shouldn't be. The government have already tried to turn society against us people do not need to be helping them to do that. The next time some one asks what you like to be called make a joke or light of it , it an only offend if you choose to let it. The next time some one offers you help be grateful and smile, the next time some one opens a door for you say thank you you ungrateful git. The barriers are there and they will never go if people start to make other people feel uncomfortable to approach or help, terrified to say anything to us or engage with us or even invite us some where in case they offend, upset or seen to discriminate.


Sunday, 20 March 2016

THE FAST AND THE FURIOUS

Nearly at the end of March already, who would believe it. I still maintain that this year will be my year for things to work and the last two month has just been a practice run. Guess we will have to wait and see.
As you are aware if you have been following my blog ( and if you haven't why not? get reading now!), This year has not had the best of starts. However three month in and things may be slightly starting to improve.

Caught up with University work and came out with a first for my Academic Mentor presentation which was great and after my personal development meeting, found out that I might not be as screwed as I thought I was with moving on to the final year. Although if all these health issues and my dads issues had not had to be dealt with what kind of grades would I be clearing? So it is with extreme caution that I apply for my final year of finance for my degree. But what comes next? For most students this would entail a masters or PHD or perhaps getting a job, but what about some one with chronic health issues such as myself? What do I do?Well I guess that is the question isn't it. Like so many others out there in the same situation (OK I admit there are people out there who do take the piss), I really want to work, even if its part time. Here is the problem, even part time I know there will be more times spent off then in and looking at my health issues most employers will take one look at me and will pass me over nor have the time, money or patience to put up with it.
So that leaves working for myself, but what as, how? The Psych Twins was supposed to be the start of that the whole, if Mohammad can't get to the mountain then the mountain will come to Mohammed thing, but with out grants/funding and being able to get contracts its all pie in the sky, a great service I keep getting told, that is greatly needed, but no money to do what we want with it, pay ourselves a wage or hire others.

So where dose that leave me? Well back at the beginning, on ESA, unemployable despite all my skills and training, just take a look at my CV (go on take a look you will find it on my LinkedIn Profile), despite the outward appearance of a withered, useless body ( I sometimes see myself as a female "Jabba The Hut" ) there is a mine of pure knowledge, skill and enthusiasm just waiting to be tapped into. This then leads to the "what's it all for then?" phase. The point at which you relaise that you are of no use, not even to yourself. You need help at home, help to go into education and help to hold down a job (if you could actually get some one to give you a chance) and the government is slowly tearing that all away from you any way.
This then moves into the "isolation" phase. As some one who has numerous illnesses/ health issues, going out socially is not a thing. Even if I had any one who would offer me to go out socially there is the accessibility of the venue and how good or bad am feeling on the day. ( All the offers of being invited places, even by family and friends dropped off after it became apparent that to invites some one out who has to use a wheelchair 90% of the time is just to darn pesky to organize. Especially if it means that one of you have to be responsible for helping said person and good god you might have to change the venue/pub route/restaurant to make sure its accessible etc etc ...you get the picture). So if you take going to university away, I leave the house once a week with my husband...maybe to look around the shops and any drs and hospital appointments. What does that mean realistically? If am lucky I will get out once a week maybe once every two/three weeks. WOW exciting life !

This then leads into the final stage..depression. yep. What more can I say about his phase, well nothing really, its all been said before. You can't see anyway out. Nothing is going to get any better, because there is nothing you can do to make it any better. No diet, exercise regime or will power is going to change those illnesses so you can go out to work, therefore get out more socially, have money to enjoy life, get  mortgage, move up in the world etc etc. No way of being a good little citizen just like the government want you to be. So you are labeled a scrounger, a waste of space, useless and society look down on you, and the government? well they just keep taking benefits away from you making it harder and harder to function on a day to day base, telling you to "get a job" "loose weight" "exercise" "this is how to improve your life and your credit"..we know! but we can't can we no one will let us.

Money wise, am lucky my husband runs his own business which ticks along for us, so things don't effect me as much as some people I know  - disabled and non disabled. I would love to go back to work, hold down a job doing something I would enjoy, bringing home a wage and getting off benefits. I dream of getting  a mortgage and owning my own house, done out to my specification no expense spared, holiday every year never mind twice a year instead of saving for 2 year to go away for  2 weeks (meaning no treats for the kids, no weekend breaks as a couple, no date nights, no family days out, no new clothes , going no where during the summer holidays etc etc).... and yes for those out there who follow my profile on Facebook I save to go to Florida and am well aware there are people who cant afford a weekend away, I did say am lucky.......to have more of a social life with my family and  friends rather then wondering if am getting out the house for an hour or two in the next 14 days.

Who knows maybe things will turn around. Maybe funding will come in and I can finally get The Psych Twins off the ground the way I want too and make a wage that way. Maybe my health will improve and I will get a job or there is some employer out there who will let me freelance as a writer or something and come in when I can for a wage.
Maybe I will become a tv personality and be on political shows and news program or have my own show. Maybe I will become a famous author. Maybe I will get the acting offer I cant refuse because of my unique physique as an amputee. and matronly and northern..yea OK the least of the lot to come true. All I do know is that I will keep on trying, wishing and dreaming. Oh and am getting an electric wheelchair ! so bright side I get to any future Film and Comic Conventions I can play a Darlek....

......................Que Dr Who theme music.........

Friday, 4 September 2015

FROM THE HIGHLIFE TO THE LOWS IN LIFE AS WELL AS THE GRITTY BITS.


And the world moves on…

 

Just had some devastating news regarding my dad this week. He has been diagnosed with mixed dementia, which is both dementia and Alzheimer’s disease. It’s aggressive and already at the stage of forgetting who we are, to eat, take medication, change his clothes etc, not to mention the mood swings and how he can sometimes be verbally abusive to my sister.  The doctor at the specialist clinic was so off handed about the whole thing when giving us the diagnosis and the way he spoke to my dad was if he was rubbish or not even there. He offered no support, medication to help with his anxiety and nowhere to turn to.

This got me thinking about how I was perceived by these people. The feeling after seeing this doctor at the specialist clinic, who when I started asking questions regarding his brain scan, demanded to know who I was and if I was in the medical profession and how did I know this information,  was very much that I had achieved or done very little because I was in a wheelchair and disabled. By the look on his face it was obvious that he had wrote me off being in a wheelchair. The look of amazement and shock on his face when I told him I was at University studying psychology was priceless! Needless to say his attitude towards me changed but not towards my dad.

The same thing happened with his GP.  Even though I was the one asking the questions and talking to him his whole body was turned away from me and all answers where directed to my sister and husband. This is extremely annoying to say the least. It also seemed to infuriate him that I could use the same language has him. This resulted in him picking up on any mistake I made about dementia or the brain even though I told him I did not know anywhere near enough information to understand what was going on completely, but that doesn’t mean I can’t make educated comments or guesses.

At this point I also started to wonder if other people with disabilities got treat the same way from so called “caring “professionals? I can never remember being treat like this before the amputations or pre wheelchair use. But this brings me to other small things that I have noticed but hasn’t really hit home before now. Such as automatic doors into places. You have them working or always open but have you noticed that if you have a pram or someone in a wheelchair you are the one waiting for other people to finish using it and wait for them to let you through? There can be 4 or 5 other doors for people who are able and capable to go through, but no, they would rather que, tut and moan and wait for you to get through, force their way through WHILST you are trying to go through, my personal favourite…quickly jump in front of you or step over you to go through ahead of you instead of thinking to themselves “ wheelchair/ pram coming through I will just use my hands and arms to push another door open to go through. What is even funnier with this is the look they give you as you are waiting on them to finish and let you through, it’s as if you are shit on their shoe or an inconvenience to their lives somehow, that’s if they can even be bothered to look at you. Some prefer to pretend they are not ill mannered or ignorant by looking straight ahead and not even acknowledge you are there.

Then there are the problem solvers. They can be a stranger, care professional, friend or even a family member. The ones who will try to fix everything when all you want is for them to listen, believe you when you say you have tried and maybe understand a little.

 Let’s face it, no one will truly understand what it is like to live with your disability on a daily basis or what you go through just to do something that before, or other people take for granted. I wouldn’t wish that on any one, but trust us, if we say we have thought every which way to try and do something or we tell you we can’t do something or something won’t work, or even if it’s a case of we have a hang up about doing something so we don’t want to do it, please, believe us, its true. Although you mean well and are only trying to help by finding a solution you’re not. All it does is infuriates us (well me anyway), makes me feel useless and as if am trying to get out of whatever “it” is. It also makes us (and again by us I mean me) feel like more of a nuisance and/or failure when we do try your “fix” to the problem, even though we have told you it won’t work, and fail, because guess what?....it wasn’t going to work like we said to start with.

My husband is a fixer and God love him, he really try’s to work outside the box so I can experience and do what I want to do. Sometimes he comes up with things I have not even thought of trying or considered, which is great! But other times he goes on and on trying to find a solution even when we have exhausted everything logical and inventive that won’t humiliate me or end up hurting or endangering my life. It just he is so focused on trying to find a solution for me because he wants me to be happy, that he doesn’t see when it stops being helpful and becomes painful or upsetting because he is going on and on about it. At this point it just feels that it is being hammered home over and over what I can’t do and am useless.

Until just last week he didn’t understand why it would upset me after a while of looking for a way around something. When I explained it to him he told me that he knew it upset me when I couldn’t do stuff I wanted with the family and all he wanted to do was make it so I didn’t miss out. What he hadn’t realised is how much it could potentially upset me when there was just no solution to be found and he kept trying to fix it.

Maybe it’s just me. It wouldn’t surprise me really. I have always liked to be different.

Sunday, 23 August 2015

LIGHTS.,CAMERA, ACTION - OR IN OTHER WORDS FILM AND COMIC CON GLASGOW 2015

So it was amazing news two weeks ago when we found out that we had been allocated press passes to film and comic con Glasgow. This was a great opportunity for me to find out exactly what differences there where between Newcastle and another venue Showmasters used, if they had made changes to how the event dealt with disabled attendees and family’s and a great chance to speak to the guests who were attending to find out their thoughts on the event, cosplaying etc and a great chance to review the good and bad and downright ugly of being disabled and travelling and attending a convention.
So we packed a bag and off we went ready to take on everything and anything that would be thrown at us in the aid of the amputee diaries and The Psych Twins.

We travelled by car up to Glasgow on the Friday tea time. Over all it was a 4 hour journey including a slight misdirection through Glasgow and stopping off for a break. This was where the first problem was encountered. We stopped at the Welcome Break services at Gretna Green. There was plenty of disabled parking spaces right at the front near to the entrance to the services. Access was good with automatic doors and all shops where accessible. However the only disabled and baby changing toilet in the services was out of order, with no idea of how long it would be out of order for.
 Now although difficult for me to walk any distance, it was a necessary evil unless I wanted an accident to happen. For people who cannot get out of their wheelchairs or a family with a special needs child or even a baby to change, this was not acceptable. There was no other alternative to this situation unless you wanted to risk however long till he next service station. Travelling back on the Saturday night we stopped at the same services and guess what? That’s right the disabled toilets where still out of order. Obviously the engineer they had called was on a go slow or didn’t do weekends!

We arrived at the Travelodge at Breahead Glasgow around 9pm. Situation was excellent as the shopping centre where the event was being held was within a 7 – 10 minute walking distance. The hotel had plenty of parking spaces and right next to the entrance. Doors where automatic so no struggling trying to open doors and the staff where very pleasant and helpful. The whole area of reception, bar and café was accessible and clean although basic, but you get what you pay for. I had requested a disabled room and included breakfast. The room allocation was excellent down stairs not that far from reception. Only issue was if you were travelling on your own then the doors are heavy to get through to the corridor where your room is situated and your room key card has to be used to open them. This would be something you would not be able to do on your own unless you are a lot more flexible and resourceful then me, which is a possibility, otherwise you will need to ask a member of staff to help.
Entrance into the room was wide enough for my wheelchair which is wider then a normal chair.  The room was very spacious with room for me to manoeuvre in the wheelchair. Everything in the room was accessible from the wheelchair apart from the shelf above the clothes rail. The bed was two singles pushed together but very comfortable with a call button on the head board.
Again the room was sparse but as I said earlier you get what you pay for. The bathroom was huge and very spacious, lots of grab rails, lowered sink and mirror etc. but was very disappointed in the disabled shower, never mind how dangerous it was!
The controls where accessible but no shelf to put any toiletries on such as shampoo and shower gel so reaching for them would be dangerous ( actually impossible for me to do). The fold down seat was way too small and it was not possible to sit on fully, so was more of a perching stool. Well this caused an enormous amount of problems for me! Having to remove both of my legs to enable me to shower, this left me feeling as if I was falling forward. You needed your legs to brace yourself when sitting down. So for someone with no legs, weak lower limbs or unable to use them at all would have major issues using this shower without having an accident! In fact it was so bad that I had to ask my husband to come in and help me get shampoo and shower gel and to make sure I didn’t fall. In order to do this I had to brace myself with my hands on the grab rails. Now for someone with fibromyalgia this was extremely painful as all my weight was put behind this as it couldn’t be put through my legs. I had to risk taking one hand off a grab rail in order to get shampoo or shower gel put into my hand by my husband so I could wash. Even then it had to be quick and couldn’t be done properly as I kept falling forward. Basically if my husband had not been there, there was no way safely I could have had a shower on my own. When oh when are companies going to realise that there are more than just infirm or elderly people and not every disability or wheelchair users needs are the same? Travelodge take a leaf out of Disney’s book please, before someone has an accident.

We decided after the long drive to just eat at the Travelodge for tea. Poor choice. Got the steak sandwich with chips. What I got was tinned steak in buns with frozen chips. With two diet Pepsi’s that where smaller then cans, it came to £22. The breakfast was an all you can eat buffet thing but choice was minimal. There was plenty of facilities nearby so if you didn’t want to eat dinner or evening meal at the hotel then soar, across the road and parking lot, has lots of other options.
The arena is actually part of the shopping centre. If you have ever been to the Metro Centre in Gateshead then if you can imagine where the food court is and Metro Land used to be then that was where the arena was.
Car parking facilities where fantastic at this shopping centre. We had never seen so many disabled parking spaces so close to the centre before at a shopping outlet.
The que was already huge when we arrived at 9.30 am and with it being held in a shopping centre there was a few issues for any one shopping in that area and trying to get past.  We hunted down a staff member, who seemed to be few and far apart and it was very unclear as to where you were supposed to que for early entry and std and there was no indication at all if you had a press pass. We were told to show our email to the staff on the door. We were then given our press passes and we were off. 
Inside there was no foyer area so nowhere to wait for people or hang around for a break. The one saving grace was with it being in a shopping centre you could come and go as you pleased as long as you got your hand stamped. This meant that if you wanted a break from the madness and the crowds you could go out and sit in the food court, grab a coffee or something to eat or if you where going to be waiting for a talk or photo shoot to happen, the option was there to look around the shops etc. This however led to its own issues. Later on in the day you were stepping (or in my case trying not to roll over) people who were sitting on the floor everywhere. This was obviously also causing issues for shoppers in the centre who were not attending the convention.

Once in you were faced with loads of stalls and traders of all kinds. Yet again showmasters had crammed in so many stalls that manoeuvring around the stalls and up and down the aisles was bad for any one, but was a logistical nightmare for someone in a wheelchair or with a pram. It made it very slow going and sometimes very frustrating to get around with some stalls being total inaccessible to any one in a wheelchair. They had spread the guests out over two floors. Plenty of room for accessing the downstairs guests but could see that as the day got busier the lines could be confusing. Access to the upper floor was via stairs, with no signs to indicate where the lift was to enable me to access that level. After spending a moment trying to ascertain where these where we give up and looked for a member of staff. That was easier said than done. Volunteers seemed to be in blue t shirts and pit bosses in red. Very few around. Eventually chased after one and asked a pit boss how to access the top floor. She seemed a little confused then pointed us towards the service doors and told us she didn’t know but had been told to point people in that direction this looked like no access to a lift but we trusted she knew better and tried to get through the heavy doors. As we did a security guard belonging to the venue came over to get the door for us. As he was doing this he asked where we were going so told him that we were looking for a lift to access up stairs. At that point he told us that we had to go back out of the arena, across the food court and the lifts where there. After getting out we had to cross the food court upstairs and round the corner to where the box office was for the arena. The doors where sealed so had to wait to be let in by a security guard. Once up there we did notice that there was a service lift and wondered if this was where she had been directing us too. Up here there was the other guests but instead of spacing the signing desks out they were all cramped up.
This made queuing difficult and again the lines confusing to follow for each guest and this was before they let in pay on the door and std ticket entry’s. When it got busy it was nigh on impossible to get through to any of the lines and trying to que without getting in peoples ways was not possible.  Staff up stairs, both volunteers and pits bosses where sparse to find and there was no Virtual queuing system so the ques where getting out of hand very quickly. At Newcastle the pit bosses and volunteers where very helpful with me being a wheelchair user and there was plenty of staff around. At Glasgow however as well as very little staff there were no concessions made for people in wheelchairs or disability’s including people on crutches. Their website itself and staff have stated that anyone who is disabled would be moved to the front of the autograph ques to make access easier for everyone but this did not happen.
Before they let the standard ticket holders in and pay on the door through it was already jammed packed and difficult to manoeuvre. On my way to interview Chris Judge, just before noon they had moved the people queuing to around the food court instead of down the centre where the shops where.
Yet again I think Showmasters underestimated the amount of people who would be attending the event equal to the size of the venue.
There was some issues as to where wheelchair users accessed the talk areas. The husband had to park me up out of the way of people and exits, (not easy) while he tried to find someone to assist, (did I mention the lack of staff?). This resulted in me being parked down in between two stalls. As I was waiting for him to return David Prowse (Darth Vader out of Star wars, for those not aware of this character or the films (shame on you)), came up beside me. Due to his failing health he was also in a wheelchair being pushed by a volunteer from Showmasters. As the volunteer was trying to sort out a rubber ramp type thing he noticed the Darth Vader sticker on my prosthetic which made him chuckle. I happened to mention how ridiculous it was trying to get around in a wheelchair to which he agreed.
We eventually found someone who directed us to a small door where we could see the talks. Although it was technically a space at the side of the stage next to a speaker and the area where the guests actually entered from, it wasn’t too bad. Then again it depended on where you were positioned as you were not looking straight on at the stage but having to turn to the side and past the person sat next to you. It also meant that come the Q & A time you were pretty much over looked if you wanted to ask a question of the guest. The space realistically could only fit three wheelchairs and their companions in, any more was not going to happen.
By 2pm the que showed no signs of dying down and even by the time we left at 3.30 pm people where still queuing to get in, even though there was barely any room to move as it was at this point. They had stopped people from entering and to be honest I am not sure how they worked out when enough people had left to let any more in due to most people being able to come and go with a hand stamp into the shopping centre. Yet again I think showmasters under estimated how many people would be interested in attending and in future should consider providing more things such as enough staff, directions being visible and accessibility of the venue chosen all need to be taken into account. Bear in mind Showmasters if you have disabled guests and attendees attending and you chose to book somewhere that looks accessible, my advice is, still check for your selves. Might be an idea to take on someone who can deal with these issues specifically. Spread the stalls out as well please this would help everyone in the long run. We know more stalls equals more money from traders per table but think about the people attending and how much more money the traders would make if everyone could access their goods and services Just a thought.

I think that these events are going to become more and more popular in the UK simply due to the fact that the fans and collectors are becoming more and more aware that they exist in this country and are no longer the privilege of the States. The celebrities are also more aware that the demand in the UK to see them is huge so more and more are going to be willing to attend these events here. People are also becoming more involved in the whole thing as they look for more places where they can go as a family and where better than some where the kids can get involved in dressing up, meet Darth Vader standing alongside Captain Jack, where princess walk the isles and all their comic and film
book hero’s and heroines come to life and not only that they can have their photo taken with them as well! All this while seeing their favourite actor out of a tv show or film and Mam and dad and grandparents can all get involved in the fun, whilst re living their youth meeting actors and actresses from their favourite 80’s and 90’s shows and films whilst at the same time picking up that must have print or collectable for the sitting room.
So come on Showmasters unless you want to be elitist and only appeal to the hardened film and comic fan or collector, cater more for the disabled, the kids and the families who really want to attend just as much as the diehard collectors and fans. The people I spoke to who said it was their first time where definitely thinking of becoming return revenue for you. Isn’t that what you want?

Chris Judge who played Teal’c in Stargate Atlantis, very kindly agreed to give us an interview. He got into college on the back of a football scholarship but was not that serious about playing as much as others where and was always geared towards acting. Originally doing pre-med at college he minored in Psychology and as a fellow Psychology Student I had to ask him about Statistics. It seems that all Psychology students around the world dislike it which is good to know I am not alone. Jim “Hacksaw” Duggan was another star I was lucky enough to talk to. Both he and Chris Judge thought that fans at conventions in the UK were fantastic, a lot more friendly and easy to talk too compared to the USA. Across there it is perceived as more of a business then an experience for fans and fans in the UK made it seem more human and hands on. In fact every one of the celebrities thought that conventions where more like one big family and they definitely seem to love that fact.
With regards to disability’s all the people I talked to saw it as no reason not to attend one of these events if you have a chance and I agree with them. There was definitely more people attending with prams and small children, who’s eyes just positively lit up when faced with all the cosplayers. A lot of the stalls here seemed to be catering their merchandise towards children although there was still plenty for the avid collector to buy, trust me!

Speaking to some of the attendees the biggest issue was once again the lack of room to get around with a pram or wheelchair, lack of staff support and lack of signs for lifts etc. Some guests were unaware that it was spread out on two floors or in fact how to even access the second floor. In fact am still trying to work out where the disabled toilets where and I have been home since 9 pm last night!  Although once found all staff where friendly. The general consensus as well was that there was no reason not to give people with disabilities extra help when getting autographs and photos done and the majority of people I spoke to have no problem with this. I am hoping to be allocated a press pass for London in the winter just to see how they deal with one of their biggest conventions in the UK, which due to size is now being held at Brighton and I will be attending (in full cosplay) the Newcastle Comic Con in November not just for pleasure but to see if they have taken anything on board from other cons and changed anything from March.
 On the subject of Cosplaying both the guests and attendees all loved to see all the cosplayers in their costumes. Robert Englund especially liked to see the fans dressed as Freddy and approved of the cross gender cosplaying. They thought it added to the overall
atmosphere of the convention and the fun of it. All the guests found it flattering when faced with a fan dressed as one of their characters, but shocked to find out about the bullying that takes place in the cosplay community.  They were also surprised about the image the UK press had given it recently. Chris Judge thought that the Sci Fi community and the convention community in general where more evolved and accepting of peoples differences, which is why I think it came as such a shock to him in particular.  Speaking to some of the cosplayers themselves, nearly all of them had experienced some form of bullying or inappropriate touching from other attendees at the conventions and even some outside of conventions such as taking part in photo shoots.
Out of the Cosplayers I spoke to all agreed that cosplaying and being part of that community helped them overcome issues such as depression, anxiety and social shyness as well as boosting their confidence and making new friends from all over the country. Convention etiquette is simple. If you would like to have a photo taken with someone in cosplay, ask, do not assume and don’t touch their costumes. Some of them take a long time, hard work and lots of money to make, having someone come along and paw at the costume or them is not acceptable. If you like a costume, tell them if you don’t, keep it to yourself. Out of all the cosplayers not one of them said no to an interview or photo when asked politely.
Oh and if you really want to know as badly as I did if people preferred Marvel to DC… Marvel was the winner. Although some arguments continued after I had left on the subject matter.


 Most of the people I talked to had not heard about iCosplay, although out of those that had it was mainly cosplayers. I mentioned that it was a charity that existed to stamp out bullying in the cosplay community, which was given a positive response, but the general overall consensus from the stars and attendees was, disabled or not, attend a convention, see what it’s like for yourself you might just like it. If you’re worried or nervous about cosplaying at a convention, take a chance, pick your favourite character and just express yourself, if it helps to bring you out of yourself, or makes it easier to interact and talk to people then even better. They very much seemed to see it as a form of escapism as well as fun. If you do experience any kind of bullying for any reason then tell someone don’t keep it to yourself and most of all at the end of the day enjoy it. Personally I really enjoyed
cosplaying. My first time was at Newcastle comic Con in March this year. I was worried about what people would say and think, especially with me being in a wheelchair, in my forty’s and overweight. I was so glad I did it though. The amount of people cosplayers and non-cosplayers and even guests who came and talked to me, liked my costume or wanted a photo taken with me was unbelievable and it was so much fun, I was hooked from that point on!  As Gareth David Lloyd, who played Yanto in Torchwood said, if you don’t like it then you don’t have to do it again. So whether you cosplay are not in the immortal words of Shia la beouf – Just Do It!
Hired The Stig as the getaway driver after starting arguments over Marvel or DC !

Sunday, 5 July 2015

DARE TO BE DIFFERENT

So Tyler's transition into comprehensive is going well. Too well, he has really enjoyed the couple of days he has spent at the school looking around and taking part in all the activities. However am wondering if it is going to be a different story once he is there full time, having to mix with the older kids and change classes all the time, learning a totally different routine. Biggest problem with him having ASD is that he does not cope well with his routine being changed.
I worry about how he is going to cope with the changing routine, the overload on his senses of sights, sounds and smells, the amount of people there are going to be. Any one of these is a potential for a meltdown for Tyler. That's not even mentioning the bully's , you know how cruel kids can be when they find out you are different to them. I certainly do. Having vivid memories from my School days at comprehensive. Constantly feeling left out, on the edge, unliked and used for peoples verbal punch bags when they felt down about themselves. Various cat calls of "spaca" " granny boots" "freak" and "cripple". Maybe am just being over sensitive because of what I have gone through, after all his differences are not physical, but even though things have supposedly moved on etc etc kids can still be cruel little gits when they want to be.
Maybe am just being a typical mum but I can't help but wonder if we are in for a rough ride when he starts school.

This brings me to the think about the difference between what is meant between "disabled" and "accessible". In this country disabled and accessible seem to mean the same thing.  Although there has been some hotels in London when we where looking to book somewhere for the London Film and Comic Con that seemed to stretch the idea of both. One hotel thought that when they listed their hotel as disabled friendly it did not matter that disabled access only meant that it was a wide foyer and automatic doors but that there where a  couple of steps at the front to access the building in the first place. When questioned about disabled access into the building, I was told that there was no ramp but if I could not manage the 6 steps outside ( bearing in mind I had already told them I was in a wheelchair and could not do stairs) then some of their staff would come and lift me in....really??? No. I dont think so.  "Disabled" toilets have both grab rails and raised toilets as well as lower sinks and wider doors for wheelchairs. The same with accessible buildings. They have automatic doors, bigger lifts and ramps. But the same thing is not true for other countries.
This has been noticeable when I have been travelling to America. In Orlando Accessible means a slightly bigger toilet with a grab rail and a slightly higher toilet, but not actually big enough to go in with a wheelchair. If you are a wheelchair user then you need to ask where a Disabled bathroom is which is then big enough for a wheelchair to get in and position/ turn around, lowered sink and hand dryer and a higher toilet and raised toilet seat and grab rails.
Bear in mind the toilets in Florida are a lot lower then in the UK so when I say the toilet is higher it means that it is about the size you would get in this country. But not every country has facilities for disabled people regardless if they are in a wheelchair or not. So I suppose we should be grateful that we do in the UK.
But are you like me? I get frustrated when you have a large male and female toilet block but only two disabled bathrooms and people still insist on using the disabled ones, even when there is no line in the other ones. This is  because they want to do their makeup and talk to  their friends or they just can't be bothered to walk the extra few steps  to the other toilets. I never have a problem with some one with a pram or small toddler especially if it is a dad out on his own with the little one . Using the disabled toilet in that situation is fair enough in my opinion. I don't know whats worse though the fact when they come out they wont look you in the eye or they come out head held high and completely blank you as if you don't exist and you are not sitting there at all !

But that is my ramblings for today. Another busy week behind me and another one ahead of me. Pain killers still not working so guess its back to the docs for that. More issues with the hands so cooking is now becoming an issue for me and any work I do have to do am finding that I am fitting it in as and when the pain and swelling allows me. The event for The Psych Twins is coming along nicely and we have been very lucky with the prizes we have been donated so far. Now we are just waiting for the printers then we can look at doing the promotion in the Bridges. Forced to look at new cars by the hubby as our mobility car is due to be renewed and preparing myself for the mayhem that will soon be the summer holidays.

If you want to get in touch with me you can on the following links for linkendin, Facebook and Twitter
https://www.linkedin.com/profile/preview?vpa=pub&locale=en_U

https://twitter.com/greebo89

https://www.facebook.com/theamputeediaries

or find out more about The Psych Twins

thepsychtwins.bravesites.com

Monday, 29 June 2015

MOVING FORWARD WHILST LOOKING BACK

Last week was all busy, busy, busy.
The Pysch Twins are going bigger and better each passing day with more and more support from local business. Which is wonderful. The results where posted of our final results for this year at University and am very pleased to announce that I received a resounding pass and proceed onto the 2nd year of campus. This is in effect will be the third year of my extended 4 year degree.
Jo and I have also been asked to do an hour slot talking to the new students in September for the level zero course during their introduction week which is great news and a fantastic chance to get some experience. On top of this we where also asked to take part in the marketing for Sunderland college. We had a lot of fun acting out for the photographer so looking forward to the results of that.

On other good news I was awarded my PIP (Personal Independent Payment). For those of you who do not know what that is it is a new benefit that is taking over from DLA ( Disability living allowance). It has been quite a controversial move by the government to replace the DLA with PIP as the rules governing the award have been tightened. This means that there are now more and more vulnerable  people who need this money to get around in the form of a car on the mobility scheme, who are left without the money to aid in their day to day routine , getting out the house or being able to work. Along with cutting the Independent Living fund , reducing the amount of money available to support disabled people whilst in work and the rumors of student finance and help for disabled students being cut or abolished, more and more people with disabilities are finding it increasingly hard to to get a job or keep it.

You have heard of the undateable's? Well met the unemployable's

That's people like me and people like my colleague. I have so many health issues that I could more then likely fill a A4 sheet with it. What that means is that I may end up having days, like this weekend where I am in so much pain I can't sleep much and barely move. In a normal five day forty hour week this would cause issues and would mean time off work on a regular biases. This doesn't mean that I am past my best before date, I still feel I have a lot to still give . Experience, skills and knowledge.But then you add on the fact that as soon as some one sees you as an amputee in a wheelchair, never mind telling them about the other health issues and medication, they immediately write you off.
Then there is people like my colleague. She has two children one with ADHD and one with ASD. Needing to be available at all times for her children just in case their was a phone call from one of the schools . Then you need to look at the mental health issues we both deal with. Depression, stress, anxiety and panic attacks. Sometimes so debilitating that you can not leave the house. There are a million people out there with the same kind of issues that still feel they have something to give , still want to work.

I miss the days of not needing anything stronger then a paracetamol for a bad head. Being be able to sleep with out a machine to make sure I don't stop breathing. To pick a pen up and write without losing the feeling in my fingers and hands. To not drop pans because my grip goes. This is just some of the joys of Fibromyalgia, apparently brought on by trauma from the two amputations and lots and lots of other operations I had gone through.

Do I regret having my amputations? The first one,,no it give me a new lease of life but then things went wrong and I ended up with the second lot. Do I regret that? .......good question. Yes sometimes, these days more yes then no.There are so many things I miss not having legs/feet. The feel of a carpet, walking on the beach feeling the sand between my toes, being able to walk into the sea, swimming with out aids and hoists. Just anything straight forward like going out and not thinking if there is stairs or disabled toilets. Funny as it sounds, being able to sit where ever the hell I wanted.

I digress. That story is for another time, another blog.  The fact that we want to work is why we have started The Psych Twins. This is a service, non profit and no staff...yet.  we started up The Psych Twins to raise money for local North East charities who get over looked. We are currently working with the Carers Center in Sunderland to raise funds for them by holding a Halloween Monster Masquerade Ball at the Stadium of Light in October.
The initial expense is coming out of mine and Joanne's pockets, which is scary,  so hopefully we will sell all the tickets . Once our costs have been covered we are hoping to raise in the region of £2000 plus for them.
 What we would like to do eventually, would be to open a Center in Sunderland that would offer help, advice and counselling/ therapy free for any one and their families , adults or children in the North East  who are disabled , whether it is a mental health issue, physical disability, amputee, wheelchair user, ASD, ADHD etc. We want to offer  a drop in center for advice such as  whats on in the area that is suitable for them, help that is available that they might not know about or just to  pick up leaflets or application forms for  services or help such as the Cinema card, attending a festival or looking at starting work or going to University. There is help out there but not very easy to find and the only reason I know is the amount of man hours researching it. But we also want to offer kids activities free such as support groups for parents with children who have ADHD or ASD for example where they can come and met and talk to people in the same situation while the children have fun doing activities or party or a sensory room. Support groups for amputees etc again where they can get together with others who are in the same situation and can support each other and not feel isolated. Also offer help applying for benefits etc but also offering counselling/ therapy for those people who need that extra one on one support. 

Its a big dream but we are determined to make it a reality. We want to hold drop in sessions at various community centers which we will fund with bake sales and coffee mornings, then the big push is getting premises to open the center.  what we would like is to get funding in order for us to take on the staff with us that we are going to need to run it and operate it as a business but keeping it a free service for people to access. This would be done by (hopefully) grants, fundraising etc. We want to hire staff who under normal circumstances would be classed as un employable by most people due to their health issues and disabilities, time they might need off. People  who have the skills and knowledge and still want to work but are often looked over due to this.

My life is a bit of an open book lol but I hope that if just one person can see that their life is not over just because of their disability or it gives one person the courage to try something they never thought they could do , or one parent the comfort knowing that every thing will just be fine then Its been a success.

Depending how successful this years ball is, we would like to hold the ball  every Halloween for charity. With any luck getting bigger and better !


Thursday, 28 May 2015

GETTING OLD

Another busy couple of weeks. The Psych Twins website is now up and running and we are adding to it all the time so you might want to take a look. psychtwins.bravesites.com and you can also find us on Facebook and twitter.

It was my birthday on the 21st ( don't ask the age), and was spoilt rotten lots of lovely presents and both dinner and tea bought for me. On the downside ended up in the emergency dentist to be told that I have at least one abscess on my broken back tooth. The pain was agony. Three days of no sleep and constant pain left me losing time and no chance to revise for my last exam on Wednesday. But sitting in the dentist it came to mind how it would work regarding me being in a wheelchair? Once in the dentists surgery he didn't even ask if I could get out of the wheelchair he just told me to get in the dentist chair. No help, no we can work round this nothing. What would have happened if I had said that I couldn't?Another issue I came across was accessibility to the premises. Most of the emergency dentists that where recommended to me by the 111 service all had stairs up into or down into a sub level business with no disability entrance.There was also no access to bathroom or surgery.
I ended up leaving with  a prescription for antibiotics and told to have the tooth removed. No I am having the same issue trying to find a dentist to register with who can fit me in sooner rather then later that has access to the building.

Better news on my birthday was the fact that Tyler had his review at hospital over his legs. About a year ago he was diagnosed with Tibia Torshin. We where told that he would be given innersoles to try and help correct the condition but if not then it could result in having to have both his legs broken, Well after his review we where told that the surgeon would rather wait until Tyler is old enough to make his own decisions about whether or not he wanted correction surgery . It still may correct itself, but it is not a genetic throwback from my Talipes which was what I was really worried about. It turns out that it is a condition that most sprinters suffer from. It was at this point the penny dropped and we knew  that it was part of Tylers constant running backwards and forwards he does on a night time due to his ASD.

Saturday although in a haze of pain and painkillers it was a special day. Annabelle's prom. She went to the spa to have her nails and hair done then a good friend of mine did us a huge favor and traveled over to the house to professionally do her make up. She looked so Grown up !!!
She wore the dress that we got her last year from Florida and her hairband we bought her from the Chinese pavilion at Epcot in Disney. finished off with black shoes and handbag and one of my costume jewelry necklaces and she looked amazing. Although am not too sure I like the idea of my little girl being all grown up. David dropped her off and he was like a proud peacock showing off his beautiful daughter, bragging to anyone who would listen.

One of the many things I miss due to my health conditions are the little things the most. Like taking my daughters shopping or having mother daughter meals and trips away, walking on the beach feeling the sand under my feet or going in the sea. That is just to name a few.I ended up back at the doctors as well due to the Tramadol and Paracetamol no longer having an effect on the pain. I have ended up with also being put on Nefopam, a painkiller am not familiar with on top of the rest to see if that helps..it doesn't. The doctors told me that I am going to have to face up to the hard truth, that sooner rather then later am going to end up on the harder drugs for the pain. Things like the Oxycontin, Zoramorph and Oramorph. I will keep on going and fighting until I no longer can before I move onto these drugs full time. Because once I do any dreams of trying to work are gone.
I am having an ultra sound done on my armpit as well as a lump has been found and unfortunately there is a terrible history of Cancer amongst the females on my mothers side. Both my sister and niece have been diagnosed with cancer of the cervix and breast and now my niece is awaiting news about a shadow that has been found on her bladder. As usual still waiting for an ultra sound on the stumps but my appointment for my neck and back is through for the 24th of June, not that I need to be told I have anything else wrong with me !!

To end on a positive note school is out! I have completed my final exam of this year and have now broke up from University for the summer. Four and a half month of doing what I want..kind of. Pleased to say I passed my last media presentation so fingers crossed it will be a pass and proceed in July.

LINKS THAT MIGHT BE HELPFUL:

http://bluebirdcare.ie/2015/05/15/transportation-for-older-people-and-disabled-drivers/

http://www.hypnotherapy-directory.org.uk/


Any help or questions please feel free to contact me here, The Psychtwins on Facebook  https://www.facebook.com/psychtwinsfundraising?ref=tn_tnmn

or at through the website link above.